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Coordinator’s Message
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How ERNs are approved?
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What are ERNs?
Why rare diseases?
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Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
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Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos and FAQ
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
News
See all articles
Propose an article for the website
Events
See all events
Propose a new event to be added to the website
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
Registry Onboarding Dashboard
My EURO-NMD
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Members contacts
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Name
Institution
Country
E
Amelia Evoli
Fondazione Policlinico Universitario A. Gemelli – Roma
Italy
F
Elena Faedo
IRCCS Ospedale Policlinico San Martino – Genova
Riccardo Faletti
Azienda Ospedaliera Universitaria Citta della Salute e della Scienza di Torino
Italy
Yuri Matteo Falzone
IRCCS Ospedale San Raffaele di Milano
Italy
Marina Fanin
Azienda Ospedale – Università Padova
Italy
Fabiana Fattori
Ospedale Pediatrico Bambino Gesù IRCCS (Regional Hospital Italy)
Italy
Julien Faure
CHU de St Etienne
France
Leonard Feasson
CHU de St Etienne
Association contre les maladies mitochondriales (AMMi)
France
Carol Fenech
Sptar Mater Dei – Malta
Malta
Silvia Fenu
FONDAZIONE IRCCS, Istituto Neurologico C.Besta di Milano
Italy
Alessandra Ferlini
AOU de Ferrara
Parent Project APS
Italy
Bruno Ferrero
Azienda Ospedaliera Universitaria Citta della Salute e della Scienza di Torino
Italy