Announcement of New Grant Funding Opportunity for Rare Disease Research
The Food and Drug Administration’s (FDA) Office of Orphan Products Development (OOPD) is pleased to…
September 19, 2023
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EURO-NMD ENDORSED: 8th Meeting “Mitochondrial Medicine – Therapeutic Development”, 18-20 March 2024
EURO-NMD ENDORSED: Mitochondrial Medicine – Therapeutic Development, the 8th meeting in this series will take…
EURO-NMD ENDORSED: Mitochondrial Medicine – The GENOMIT initiative.
Mitochondrial Medicine. The GENOMIT initiative in Pisa, Italy on November 17-18, 2023. Participants from: Italy,…
Registration has opened for the Inter-University Diploma of Myology (DIU de Myologie) 2023/2024 – in French
Registrations for the 2023-2024 session of the Inter-University Diploma of Myology (DIU de Myologie) are…
Consensus paper on management of seizures in mitochondrial patients
Child and adult neurologists from 4 European Reference Networks (MetabERN, ERN-RND, European Reference Network for…
CPMS Cases/”Panels” monitorization
In this page you find the excel files related to cases open and closed in…
Fighting Diagnostic Odyssey in Rare Peripheral Neuropathies
Peripheral neuropathies are a group of disorders that affect the peripheral nerves, i.e. the nerves…
EURO-NMD Academy (Moodle)
Welcome to the EURO-NMD Academy: Where Neuromuscular Disorders Education is Revolutionized! Our cutting-edge platform, powered…
EURO-NMD Academy
The EURO-NMD Academy is an online hub containing educational material produced by EURO-NMD, the European…
EURO-NMD ENDORSED: MYO-MRI 2023 “Imaging in Neuromuscular Disease 2023”, Berlin on November 5-7, 2023
The conference “Imaging in Neuromuscular Disease 2023” will be held again in Berlin on November…
ORPHA codes updates
Orphanet has developed and maintains the Orphanet nomenclature of rare diseases, that is cross-referenced with…
Propose a case for discussion during the Neuromuscular Imaging meeting
The meetings take place every 2nd Monday of the month (except July and August). The…