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In ERN-RND July newsletter read about: ERN-RND Annual Meeting took place online on 30 June…

The TREAT-NMD Alliance are organising the 7th international conference focussing on translational medicine in inherited…

EURO-NMD is running a survey to map the training needs in rare neuromuscular diseases in…

The First CPMS Grand Round was a success according to the feedback that we have…

One year ago, the EURO-NMD has launched a survey for Hospitals to feedback the situation…

The Grand Rounds will be bi- monthly 1-hour online clinical discussion sessions of undiagnosed/complex/unusual presentations…

The following graphs reflect the totality of answers according to people’s grading of their satisfaction…

The most recent newsletter from the Institute of Myologie is available. Among many other themes…

“The ERN Exchange Programme was designed to share knowledge and stimulate collaboration between healthcare professionals…

This month’s Orphanews has an editorial about “Building a better future for rare diseases: campaigns…

The ERN-RND July 2021 newsletter talks about the ERN-RND Annual Meeting, contains information about, webinars,…

Although the main outcome measure of the trial was not met (“Changes in DUX4-driven gene…