Saturday, 10 October 2026 | 08:30–13:30 CET
Our partner ERN-RND is organising a scientific symposium on the role of registries in rare neurological diseases.
The programme will explore how patient registries contribute to natural history research, clinical trial readiness and evidence generation. Experts, healthcare professionals, regulators and patient representatives will discuss:
- Frameworks for rare neurological disease registries
- Examples of registry initiatives within ERN-RND
- Patient and family expectations
- Regulatory and methodological considerations
- The use of registry data in clinical trials and post-authorisation studies
The symposium will take place from 08:30 to 13:30 CET.