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About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
How to add or update a content?
How to Reference our Network in your Publications?
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Patient Advisory Board
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Overview of Patient Participation in EURO-NMD
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Clinical Patient Management System (CPMS)
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EURO-NMD Academy (Moodle)
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Educational Videos
EURO-NMD endorsement of educational activities
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Events
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Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
How to add or update a content?
How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
News
Events
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
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Inter POSTGRADCV EURONMD
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Inter POSTGRADCV EURONMD
Members of Inter POSTGRADCV EURONMD
View group members
Houda Ali
Operational member
Philippe Corcia
Teresinha Evangelista
Amelia Evoli
Shahram Attarian
Susana Quijano-Roy
Edoardo Malfatti
Francesco Muntoni
Antonio Toscano
Co-Chair
Serenella Servidei
Nicole Voet
Mika Martikainen
Marianne De Visser
Chair
Benedikt Schoser
Co-Chair
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