Parent Project APS

Parent Project APS is an association of patients and parents with children with Duchenne and Becker muscular dystrophy.
Since 1996 they have been working to improve the treatment, quality of life and long-term prospects of our children and youth through research, education, training and outreach.

The heart of our association is families: Parent Project was born from the initiative of a group of parents who decided to join forces to ensure the best opportunities for their children and to support each other, creating a network that today includes about 20,000 people, including families, volunteers, clinicians, researchers, and supporters.

Without the parents who got together and continue to get involved, our dream would not have begun. Over time, the association has grown, given itself an organizational structure and staff, thanks to which the dream we share continues to materialize every day.

Over time, they have created a network of collaborations among researchers, clinicians, patient associations and regulatory agencies. This combination of stakeholders, currently unique in the rare disease arena, has enabled and will increasingly enable us to accelerate the progress of disease research.