Registry Hub Paper out now!
The EURO-NMD Registry paper has just been published on the Orphanet Journal of Rare Diseases.…
The EURO-NMD Registry paper has just been published on the Orphanet Journal of Rare Diseases.…
Registry Onboarding has started The ERN EURO-NMD Registry Hub intends to collect data from the…
Patient centered and interoperable registry hub for Rare Neuromuscular Diseases A recognised challenge for rare…