Registry Hub Paper out now!
The EURO-NMD Registry paper has just been published on the Orphanet Journal of Rare Diseases.…
January 30, 2024
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Registry Onboarding is ongoing
Registry Onboarding is ongoing The ERN EURO-NMD Registry Hub intends to collect data from the…
Registry Hub for Rare Neuromuscular Diseases
Patient centered and interoperable registry hub for Rare Neuromuscular Diseases A recognised challenge for rare…