EURO-NMD Registry: Growing Participation Across Europe
The EURO-NMD Registry, launched to support research and improve care in neuromuscular diseases, is gaining momentum. Despite the complexity of implementation, participation is steadily increasing, with 641 patients enrolled across 12 countries, demonstrating growing engagement within the EURO-NMD network and progress towards establishing a truly pan-European clinical registry. Looking ahead, several developments will further strengthen the registry, including expansion beyond ERN centres, integration of patient-reported outcomes, and deployment of the EURO-NMD Registry Hub to support joint analysis with fragmented data sources enhancing the potential for cross-border research.
CONGRATULATIONS!
IT08 PISA
IRo7 Beaumont Hospital, DUBLIN
DE39 GOETTINGEN
ES12 Hosp UIF La Fe – VALENCIA
DE38 FREIBURG
GR20 Eginitio Hospital, ATHENS
ES10 12 Octobre, MADRID
PT01 PORTO
FI01 HELSINKI
FR01 Hôpital Pitié Salpétrière, PARIS
LT04 Kauno Klinik, KAUNOS
CY02 Cyprus Institute of Genetics and Neurology, NICOSIA
LV01 Children’s Hospital, RIGA
ES09 Vall d’Hebron, BARCELONA
NL09 RADBOUD
Date of update: 12/03/2026
