ORPHA codes updates
Orphanet has developed and maintains the Orphanet nomenclature of rare diseases, that is cross-referenced with…
June 7, 2023
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Propose a case for discussion during the Neuromuscular Imaging meeting
The meetings take place every 2nd Monday of the month (except July and August). The…
9th EAN Congress 2023
For the 9th annual congress of the European Academy of Neurology we will be travelling…
EACCME credits: Neuropathies Rehabilitation Summer School (EURO-NMD endorsed)
The Neuropathies Rehabilitation Summer School, held under the auspices of ERN EURO-NMD, is a specialized…
HaDEA : HORIZON EUROPE – Call for proposals – Health Research dedicated on rare diseases
Exchange of knowledge on diagnosis and treatment of rare diseases can improve the quality of…
From Lab to Clinic: Translational Research for Rare Diseases
The new session of the MOOC “From Lab to Clinic: Translational Research for Rare Diseases” has been…
Course “Development of Clinical Practice Guidelines”
The course “Development of Clinical Practice Guidelines” is already available in the EU Academy of…
Accredited Duchenne Center Program now accepting applications
Accredited Duchenne Centers provide comprehensive care according to the international care considerations and consensus guidelines.…
The U.S. Food and Drug Administration (FDA) – Rare Neurodegenerative Disease Grant Program
The U.S. Food and Drug Administration (FDA) announced a new funding opportunity for the FDA Rare Neurodegenerative Disease…
AFM-Telethon International Thematic Call for Projects 2023 focused on: Innovative Mitochondrial Medicine
AFM-Telethon is pleased to announce the launch of its first international call for proposals for…
ERN EURO-NMD Neuromuscular Imaging Cross-Cutting Specialist Working Group Session
ERN EURO-NMD NEUROMUSCULAR IMAGING CROSS-CUTTING SPECIALIST WORKING GROUP SESSION for EU cases, registered in the…
OMNIS (Open Muscle Nerve Imaging Series)
OMNIS (Open Muscle Nerve Imaging Series) for non EU cases, with access to online discussion…