Consensus paper on management of seizures in mitochondrial patients
Child and adult neurologists from 4 European Reference Networks (MetabERN, ERN-RND, European Reference Network for…
July 26, 2023
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CPMS Cases/”Panels” monitorization
In this page you find the excel files related to cases open and closed in…
EURO-NMD Academy
The EURO-NMD Academy is an online hub containing educational material produced by EURO-NMD, the European…
EURO-NMD ENDORSED: MYO-MRI 2023 “Imaging in Neuromuscular Disease 2023”, Berlin on November 5-7, 2023
The conference “Imaging in Neuromuscular Disease 2023” will be held again in Berlin on November…
ORPHA codes updates
Orphanet has developed and maintains the Orphanet nomenclature of rare diseases, that is cross-referenced with…
Propose a case for discussion during the Neuromuscular Imaging meeting
The meetings take place every 2nd Monday of the month (except July and August). The…
9th EAN Congress 2023
For the 9th annual congress of the European Academy of Neurology we will be travelling…
EACCME credits: Neuropathies Rehabilitation Summer School (EURO-NMD endorsed)
The Neuropathies Rehabilitation Summer School, held under the auspices of ERN EURO-NMD, is a specialized…
HaDEA : HORIZON EUROPE – Call for proposals – Health Research dedicated on rare diseases
Exchange of knowledge on diagnosis and treatment of rare diseases can improve the quality of…
From Lab to Clinic: Translational Research for Rare Diseases
The new session of the MOOC “From Lab to Clinic: Translational Research for Rare Diseases” has been…
Course “Development of Clinical Practice Guidelines”
The course “Development of Clinical Practice Guidelines” is already available in the EU Academy of…
Accredited Duchenne Center Program now accepting applications
Accredited Duchenne Centers provide comprehensive care according to the international care considerations and consensus guidelines.…