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About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
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Who’s who in EURO-NMD
Cross-Border Healthcare Directive
How to add or update a content?
How to Reference our Network in your Publications?
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Patient Advisory Board
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Overview of Patient Participation in EURO-NMD
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Clinical Patient Management System (CPMS)
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EURO-NMD Academy (Moodle)
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Educational Videos
EURO-NMD endorsement of educational activities
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News
Events
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
How to add or update a content?
How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
News
Events
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
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Registry Core Group
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Registry Core Group
Registry Core Group
Members of Registry Core Group
View group members
Teresinha Evangelista
Carla D'Angelo
Operational member
Antonio Atalaia
Operational member
Jan Kirschner
Hanns Lochmüller
Adrian Tassoni
Dagmar Wandrei
Nawel Lalout
Peter-Bram ’t Hoen
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