Skip to main content
Skip to footer
Search ...
Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
News
See all articles
Add a new article
Events
See all events
Add a new event
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
News
See all articles
Add a new article
Events
See all events
Add a new event
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
Private
Home
>
Guidelines
A A A
Guidelines
Members of Guidelines
View group members
Teresinha Evangelista
David Beeson
Gisèle Bonne
Adela Della Marina
Amelia Evoli
Marguerite Friconneau
Sabrina Sacconi
Lorenzo Maggi
Jens Schmidt
Davide Pareyson
Ulrike Schara-Schmidt
Massimilanio Filosto
Francesc Pla
Daniel Natera de Benito
Thomas Sejersen
Rachel Thompson
Jacqueline Palace
Benedikt Schoser
Michael Keogh
Please login to see all emails address of this group
Sub groups
Guidelines core group
Guidelines Paed
Return
