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About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
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Who’s who in EURO-NMD
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How to Reference our Network in your Publications?
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Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
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Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
How to add or update a content?
How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
News
Events
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
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Guidelines
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Guidelines
Members of Guidelines
View group members
Teresinha Evangelista
David Beeson
Gisèle Bonne
Adela Della Marina
Amelia Evoli
Marguerite Friconneau
Sabrina Sacconi
Lorenzo Maggi
Jens Schmidt
Davide Pareyson
Ulrike Schara-Schmidt
Massimilanio Filosto
Francesc Pla
Daniel Natera de Benito
Thomas Sejersen
Rachel Thompson
Jacqueline Palace
Benedikt Schoser
Michael Keogh
Sub groups
Guidelines core group
Guidelines Paed
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