Palliative care in Neuromuscular Disorders
Delivered by Profs Tracey Willis and Derek Willis Biosketch of Prof Tracey Willis I am a dedicated paediatric neurologist with a special interest in…
16 Dec 2021
Events
We will keep the event information shown here as up to date as possible however, we strongly recommend that you check directly with any event that you are planning to attend to ensure it is indeed taking place at this time.
This page aims to provide a comprehensive listing of meetings and events relevant to the neuromuscular field. If you wish to notify us of an event that should be included in our listing, please on this button below.
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Future EventsPast Events2021 - Dec
Health technology designed for children with children
“Versatility is key to the development of health technology for children and young people so that it is adaptive to their social, physical and developmental…
ERN-RND Webinar : Deep brain stimulation in children with acquired dystonia
recording coming soon Delivered by Anne Koy, 7 December 2021, 3-4pm CET The speaker is neuropeadiatrician and head of the Centre for Dystonic Movement Disorders…
Translational Summer School 2021
3rd Neuromuscular Translational Summer School Under auspices of EURO-NMD and TREAT-NMD 6-10 DECEMBER 2021 Leiden University Medical Center, the Netherlands Target audience: – MDs – PhD/Postdoc researchers – Others working…
2021 - Nov
ERN-RND Webinar : Pure autonomic failure: really that pure?
Slides coming soon Delivered by Alessandra Fanciulli, 23 November 2021, 3-4pm CET Dr Fanciulli is deputy director of the Dysautonomia Center at the Innsbruck Medical…
Muscle & Statins
Delivered by Kristl Claeys, University Hospitals Leuven, Belgium The webinar on “Muscle and Statins” on Thursday November 18th 2021 will cover the wide range of…
ERN-RND Webinar : Clinical Outcome Assessments in Ataxias
Delivered by Thomas Klockgether on November 9th The speaker is a Professor in Neurology and Director of the Clinic and Polyclinic for Neurology at the…
Educational Webinar 1 – Current research services available for the rare diseases community
Delivered by Anton Ussi on Monday 8th November 2021, 15.00 – 16.00 h CET Anton Ussi from EATRIS will introduce the cutting edge resources and…
2021 - Oct
Pelizaeus-Merzbacher disease and related disorders
Delivered by Nicole Wolf on 26th october 3-4pm CEST The speaker is a consultant child neurologist and associate professor at the Emma Children’s Hospital, Amsterdam…
Rare Diseases’ therapies integration in diagnostic support tools through the Treatabolome platform
Presented by : – Gisele Bonne, Sorbonne University – INSERM – Institut of Myology, Paris, France – Carles Hernandez-Ferrer, CNAG -CRG, Barcelona, Spain -…
Oligonucleotide therapies: a new class of drugs that allow precise genetic targeting
Delivered by Annemieke Aartsma-Rus on 19th october 3-4pm CEST The speaker is Professor of Translational Genetics at the Department of Human Genetics at the Leiden…
Functional gait disorders: a sign-based approach
Delivered by Jorik Nonnekes on 12th october 3-4pm CEST The speaker is consultant physiatrist and researcher at the Radboud University Medical Centre (Radboudumc), Department of…