X-linked adrenoleukodystrophy (adult/paediatric focus)
Click to view webinar Marc Engelen is a Pediatric Neurologist from the University Medical Center in Amsterdam, the Netherlands. He is an expert on adrenoleukodystrophy…
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Click to view webinar Marc Engelen is a Pediatric Neurologist from the University Medical Center in Amsterdam, the Netherlands. He is an expert on adrenoleukodystrophy…
Postponement of the RE(ACT) Congress and IRDiRC Conference We regret to announce that this event has postponed due to current international travel policies. It…
Click to view webinar Tobias Bäumer is a Professor of Neurology and Head of the Experimental Neurophysiology, Paediatric and Adult Movement Disorders and Neuropsychiatry Group…
The innovative “Rare Diseases Research (RDR) Challenges” call will be implemented to facilitate and fund collaboration between industry, academia, SMEs, and patient organizations to solve…
Rare Disease Day 2020 is on Saturday 29th February! We don’t think it can get more special than that! More details to follow.
This webinar will be presented by Professor Robert McFarland from Newcastle University in the UK. Joint webinar series by the European Reference Networks for Rare…
Click to view webinar Martin Paucar Arce is a neurologist from the Karolinska Institutet in Stockholm, Sweden, specialized in movement disorders. Joint webinar series by…
Rare Disease UK is hosting the UK’s first ever film festival that is dedicated to raising awareness of rare diseases. We are inviting charities, companies,…
Click to view webinar This webinar was delivered by Professor Kailash Bhatia of Clinical Neurology in the Department of Clinical and Movement Neuroscience at the…
Kailash Bhatia is a Professor of Clinical Neurology in the Department of Clinical and Movement Neuroscience at the Institute of Neurology, UCL, Queen Square, London.…
Click to view webinar Nicole Wolf delivered this webinar. She is child neurologist at the Center for Childhood White Matter Disorders, VU University Medical Center,…
Click to view webinar The webinar was presented by Jan Lewerenz who a is neurologist, University Hospital Ulm, Germany. Joint webinar series by the European…