Translational ‘Summer’ School 2021

6 – 10 December 2021
The organising committee of the 2021 Neuromuscular Translational Winter school has made the difficult decision to transform the 2021 Neuromuscular Translational Winter School which was due to be held in Leiden on December 6th -10th 2021, into a totally online event. It would be irresponsible of us to run the Winter School as a face – to – face event when the present situation is so volatile. Unfortunately the EACCME cannot reconsider the new online program because interactive sessions have been removed, the timings are different and days are shorter .We have therefore removed all references to EACCME accreditation from our event material and website. You can see the readapted 2021 online program below. We sincerely apologise for any inconvenience caused and we hope you appreciate the difficult decision this has been for the organising committee.  Our very best wishes go out to you at this challenging time. TREAT-NMD and EURO-NMD Secretariat


– Organised in collaboration with TREAT-NMD


Please note

The details below were intended for our 2020 Summer School which we were unable to run due to the COVID19 pandemic and as such they may be subject to some changes to ensure they are appropriate for 2021.

Aim:

  • Facilitate the clinical development of therapies for NMDs

Objectives:

  • Educate clinicians and researchers working in the NMD field on aspects relevant for translational therapy development:
    • Bench to bedside research
    • Regulatory system
    • Clinical trials
    • Outcome measures
    • Patient communication
    • Registries and biobanks
    • Biomarkers and -omics
  • Outline and showcase how networks like EURO-NMD and TREAT-NMD facilitate therapy development
    • Standards of care
    • Clinical trial tools
    • Outcome measure development
    • Interaction with stakeholders

Annemieke Aartsma-Rus

COI declaration

(Leiden University Medical Center, LUMC, the Netherlands & John Walton Muscular Dystrophy Research Centre, Newcastle University, UK)
Teresinha Evangelista COI declaration (Institut de Myologie, Group Hospitalier Pitié-Salpêtrière, Paris, France)
Silvere van der Maarel COI declaration (Leiden University Medical Center, LUMC, the Netherlands)
Andoni Urtizberea COI declaration (FILNEMUS, Filière Nationale, Neuromusculaire, Paris, France)


Programme


Please note: This is only an example and as such may differ from the final progamme.

Leiden is situated in the county of South-Holland, between The Hague and Amsterdam which is approximately 30 minutes away. The distance between Leiden and the North Sea coast is 12 kilometres. The historic compact city, which has lots of attractions within walking distance, links the Bulb Region and the Green Heart. One of Leiden’s main features is immediately noticeable: the water. Leiden has the most water flowing within its gates after Amsterdam. Due to its location on the edge of the Holland Lake District (Hollandse Plassengebied), various boating routes for pleasure andtouring pass through Leiden and its vicinity. The water surface of the Holland Lake District stretches further than the Frisian lakes. Magnificent boating routes pass over the Old Rhine and the Vliet, straight through the historic inner city, from the onelake area to the other. No other city in the Netherlands has so many famous museums within walking distance from each other. Master pieces from Rembrandt and Lievens, dinosaur skeletons, krises from Indonesia, an anatomical theatre, an Egyptian temple, treasures from Japan, the botanical garden where the first tulips in the Netherlands grew and a journey of discovery through the human body: Leiden’s museums offer a surprising range of nature, art and culture. Anyone walking through Leiden will sense the energy and atmosphere that can make meetings so special, in the inner city, with a large variety of stores on offer, but also for example in the Bio Science Park, which is buzzing with innovations thanks to the collaboration between companies, theBorough and knowledge institutions.

 

Arriving by Air

Leiden city is ideally situated: only a stone’s throw from large centres such as The Hague and Amsterdam. The city is within easy reach from abroad, with Schiphol airport 20 minutes away and the smaller Rotterdam The Hague Airport 25 minutes away.  


Car

Leiden is easily accessible by car due to its location between the A4 and A44 motorway. The inner city is mainly car-free. There are more than three thousand car parking spaces arranged in a circle around the historic heart, spread across various multi-story and ground-level car parks.  


Public Transport

Leiden is very easy to reach by public transport. Trains from all directions stop at Leiden central station. The Hague is ten minutes away by train and Amsterdam Central Station only 35 minutes. It is a short stroll from the station to the inner city. There are also high frequency bus services to virtually all areas within the city and its vicinity.

The rate for regular participants is 100 euros. The participants from Industry pay a different rate (1000 euros).

Further details

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern