Introduction to Clinical Trials
Summer School Webinar in collaboration with Treat-NMD This webinar will cover the features of Clinical Trials, in particular the ones for Rare Diseases. Setting…
24 Jun 2021
Events
We will keep the event information shown here as up to date as possible however, we strongly recommend that you check directly with any event that you are planning to attend to ensure it is indeed taking place at this time.
This page aims to provide a comprehensive listing of meetings and events relevant to the neuromuscular field. If you wish to notify us of an event that should be included in our listing, please on this button below.
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Future EventsPast Events2021 - Jul
2021 - Jun
New Limb-Girdle Muscular Dystrophies Classification
This WEBINAR discusses the new classification of LGMDs and maps the current classification to the previous one, explaining the rationale of the updates that…
‘Update Metachromatic Leukodystrophy’
‘Update Metachromatic Leukodystrophy’ is a joint webinar organized by ERN-Rare Neurological Diseases with the European Academy of Neurology and the ERN Euro-NMD for rare neuromuscular…
Addressing disease heterogeneity in myotonic dystrophy. Towards personalized intervention.
Delivered by Alain Geille, (president Euro-DyMA), Peter-Bram ‘t Hoen and Baziel van Engelen Jun 10, 2021 16:00 Paris time This seminar will focus…
MRI pattern recognition in leukodystrophies
Delivered by: Nicole Wolf (Emma Children’s Hospital, Amsterdam University Medical Centre, the Netherlands) On the: 8 June 2021, 3-4pm CET The speaker is consultant child…
2021 - May
What’s new in FSHD?
This webinar is about what is new in FSHD. The field of FSHD is rapidly evolving. The clinical and genetic variability of this disease become more…
Muscle and Ageing
This Euro-NMD webinar, organised in collaboration with ERN-RND Rare Neurological Disorders and the European Academy of Neurology, is about Muscle and Ageing. It is…
2021 - Apr
Research study on neuromuscular diseases: interactive session with families.
Share4 Rare is organizing a webinar for families who want to join the Share4Rare research pilot. This research project focuses on how being an /…
MR Biomarkers in Spinocerebellar Ataxias
Click to view webinar Next European Reference Network for Rare Neurological Diseases joint webinar with Euro-NMD ERN for rare neuromuscular diseases and the European Academy…
Modeling disease progression in GNE Myopathy
https://youtu.be/D6SaNX6uM-k Delivered by: Melanie Quintana Description: We describe a Bayesian repeated measures model based on quantitative muscle strength data from a prospective Natural History…
2021 - Mar
Setting up a FAIR registry for Euro-NMD
https://youtu.be/LIpUU-wj530 Watch this video-presentation by Peter-Bram van ‘t Hoen, where he shares his first experiences and plans for setting up an European Reference Network…
Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity
Click here to view webinar 23MAR 2021 15:00-16:00 CET Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity’ by Harro Seelaar The speaker is Neurologist…