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THEME: Muscle hyperexcitability and cramps Dr. Federica Montagnese (Friedrich-Baur Institute, Department of Neurology, Ludwig-Maximilian University Munich, Germany) TIMESLOT: 9th March 2023 at 16:00 CET BIOSKETCH:…
Description: Tuberous sclerosis complex (TSC) is a rare genetic disorder that can affect any organ system. Many manifestations can be associated with severe morbidity and…
Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD)…
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people…
In this webinar, Viviana Giannuzzi, Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus will overview what should be done at the very least before starting…
Description: Myoclonus–dystonia syndrome is a childhood-onset movement disorder related to mutations in the SGCEgene. Movement-related symptoms usually first appear in childhood or early adolescence, with…
The 12th edition of the Awards will take place on Tuesday, 21st February 2023 at the DoubleTree by Hilton Brussels City, Brussels, Belgium. The event…
Stéphane Vassilopoulos is “Directeur de Recherche” at the “Centre de Recherche en Myologie”, the unit 974 of INSERM in Paris. In 2007 he defended a…
Porto, 2-3 Feb 2023
BASIC WEBINARS SERIES THEME: Proximal Weakness PRESENTER: Prof. Kristl Claeys (University Hospitals Leuven, Belgium) TIMESLOT: 26th January 2023 at 16:00 CET BIOSKETCH: Kristl Claeys,…
BASIC WEBINARS SERIES THEME: Dysphagia in Neuromuscular Diseases PRESENTER: Prof. Marianne de Visser (Academic Medical Centre, Amsterdam, NL) TIMESLOT: 22 December 2022 at 16:00 Paris time…
3-4 pm CET This webinar is part of the series of educational webinars jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND)…