19 – 20 April 2024
The ProDGNE team is thrilled to meet you soon in the beautiful capital of Sardinia, Cagliari!
On the third and final year of the EJP RD grant which made ProDGNE possible, we are organising an international meeting on GNE Myopathy which will gather patients, researchers, healthcare professionals and stakeholders involved in GNE Myopathy and Rare Diseases world-wide.
We invite you all to join us in making this an opportunity for learning from patients, meeting new collaborators, creating new connections, share ideas and ongoing efforts while expanding and building an open science and collaborative framework for people living with GNE Myopathy.
On Day 1 (April 19, 2024) at 15:30 CEST, meet our coordinator Teresinha Evangelista, who will present:
“European Reference Networks: a European model of cross-border collaboration in RDs diagnosis and care” Register for this session!
Register here for the whole meeting!
Registration deadline: 15th April 2024
