ProDGNE International Meeting on GNE Myopathy 2024

19 – 20 April 2024

The ProDGNE team is thrilled to meet you soon in the beautiful capital of Sardinia, Cagliari!

On the third and final year of the EJP RD grant which made ProDGNE possible, we are organising an international meeting on GNE Myopathy which will gather patients, researchers, healthcare professionals and stakeholders involved in GNE Myopathy and Rare Diseases world-wide.

We invite you all to join us in making this an opportunity for learning from patients, meeting new collaborators, creating new connections, share ideas and ongoing efforts while expanding and building an open science and collaborative framework for people living with GNE Myopathy.

On Day 1 (April 19, 2024) at 15:30 CEST, meet our coordinator Teresinha Evangelista, who will present:

European Reference Networks: a European model of cross-border collaboration in RDs diagnosis and careRegister for this session!

Register here for the whole meeting!

Registration deadline: 15th April 2024

Further details

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit