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Filnemus and ERN Euro-MND are organizing a Webinar on the ERN EURO-NMD registry on Wednesday, June 12, 2024 at 13:00 CEST. This webinar presented by…

The 57th annual European Human Genetics Conference will take place in Berlin, Germany from Saturday June 1 to Tuesday June 4, 2024. The ESHG conference…

We are excited to announce the upcoming Duchenne Care Conference 2024. This online conference is taking place on May 27 & 28 from 15:00 –…

Recordati Rare Disease Foundation (RRDF) course “Metabolic myopathies – challenges and solutions” will be held in Split, Croatia on May 16-18, 2024. RRDF courses have…

The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe. By bringing together people with rare diseases and patient advocates, policy makers, healthcare industry representatives, clinicians, regulators…

The international congress dedicated to neuromuscular science, MYOLOGY 2024, will take place in PARIS on April 22th-25th, 2024. This 8th edition is expected to gather about 1,000 delegates from…

The ProDGNE team is thrilled to meet you soon in the beautiful capital of Sardinia, Cagliari! On the third and final year of the EJP…

ERN-RND is happy to announce that they are organising a Spring School “DBS in Dystonia” on 17-19 April 2024, which will be held online.  …

This online info session is open to all researchers and innovators at any career stage and from any field of research, especially young researchers. The…

SMA Europe takes great pride in inviting scientists and young researchers as well as clinicians and other healthcare professionals from all over the world to…

As part of the training activities proposed by EJP RD, an 3-day training course on “Training on strategies to foster solutions of undiagnosed rare disease cases” is being organised by…

Exciting Announcement! Join EURORDIS-Rare Diseases Europe for a captivating webinar enhancing Patient Partnership, featuring a unique patient’s perspective from the Chair of our Educational Board,…