13 October 2022
Pre-recorded webinar in May 2022, delivered by Robert Pangalila (Rijndam Rehabilitation Clinic and Erasmus University Medical Centre, the Netherlands) on 13 October 2022 at 16:00 Paris time. The speaker will be present at the end of the webinar to participate in the Q&A. Patients will also be present to share their stories.
The topic is QUALITY OF LIFE for patients with Neuromuscular Diseases.
It will include patient testimonials:
- Jon Rey-Hastie (United Kingdom)
- Madelon Kroneman (the Netherlands)
- Laetitia Ouillade (France)
- Boryana Stoyanova (Bulgaria)
- Patrizia Garzena (Italy)
