…TIMESLOT: Thursday 23 January 2025 16:00 CET
…THEME: Challenges in the diagnosis and treatment of Inflammatory Neuropathies
…PRESENTERS: Dr. Filip Eftimov (Amsterdam UMC, the Netherlands) and Jean-Philippe Plançon (EPODIN)
Filip Eftimov is a neurologist at the Amsterdam University Medical Centers with special interest for neuromuscular disorders, and in particular inflammatory neuropathies. His research focusses on chronic inflammatory polyneuropathies, and on disease-overarching auto-immunity. He is the Principal Investigator of INCbase, an international registry in CIDP. He has contributed to several randomized controlled trials in CIDP (PREDICT, PATH, FORCIDP, DRIP, ADHERE) and has been the coordinator of two investigator-initiated multicenter RCT’s (IOC and OPTIC trial). He also serves as board member on the Inflammatory Neuropathy Consortium and the Dutch Neuromuscular Center.
Jean-Philippe Plançon was born in 1969 and has been living with a rare immune-mediated neuropathy for 25 years.
He is graduated in the field of public health, education, rare diseases, advocacy, business and corporate strategy.
In 2006 Jean-Philippe founded Association Française contre les Neuropathies Périphériques(AFNP), a patient organization supporting people affected by rare neuromuscular diseases such as Guillain-Barré syndrome, CIDP, MMN, Lewis-Sumner syndrome, Miller Fisher and other related disorders including painful neuropathies.
Since 2019, Jean-Philippe is the president of the European Patient Organization for Dysimmune and Inflammatory Neuropathies (EPODIN) and he is also the vice-president of the French Rare Diseases Alliance, composed of 240 RDs patient associations.
After having been a member of several expert committees of the French National Agency for the Safety of Medicines and Health Products (ANSM), since 2021 Jean-Philippe is vice-chairman of the Board of Directors of this agency.