Online

This online info session is open to all researchers and innovators at any career stage and from any field of research, especially young researchers. The…

…TIMESLOT: 14 March 2024 16:00 CET …THEME:  New suggestions for management and treatment of patients with Pompe diseas …PRESENTER: Prof. Antonio Toscano (University of Messina,…

Exciting Announcement! Join EURORDIS-Rare Diseases Europe for a captivating webinar enhancing Patient Partnership, featuring a unique patient’s perspective from the Chair of our Educational Board,…

…TIMESLOT: 29 fev. 2024 16:00 CET …THEME: Rhabdomyolysis​ …PRESENTER: Prof. Antonio Toscano (University of Messina, Italy) …BIOSKETCH: PROF. ANTONIO TOSCANO, M.D., born 16/12/1956 in Messina,…

Delivered by Lize Jiskoot (Erasmus Medical Center Rotterdam, Netherlands) 27 February 2024, 3 – 4 pm CET

Delivered by Lucia Laugwitz ( University Hospital Tübingen, Germany) 20 February 2024, 3 – 4 pm CET

Delivered by Sarah Tabrizi (UCL Queen Square Institute of Neurology, London, UK)

…TIMESLOT: 25 jan. 2024 16:00 CET …THEME: Distal Myopathies …PRESENTER: Prof Bjarne Udd (Director of the Tampere Neuromuscular Center, Tampere University Hospital, Finland​) …BIOSKETCH: Clinical neurologist with…

Join EPICARE, ERN Ithaca, ERN RND and us for a deep dive into the world of Neurological Disorders and European Reference Networks at our upcoming…

…TIMESLOT: 11 jan. 2024 16:00 CET …THEME: Respiratory insufficiency in Neuromuscular Diseases …PRESENTER: Dr. Maxwell Damian (Consultant Neurologist and Clinical Neurophysiologist, Intensive care expert, NHS,…

…TIMESLOT: 4 jan. 2024 16:00 CET…THEME: Cognitive Symptoms in Myopathies …PRESENTER: Dr. Jens Reimann (Department of Neurology, University Hospital Bonn, Germany) …BIOSKETCH: Dr. Jens Reimann…

WEBINAR CANCELLED! We apologize for the inconvenience but this webinar had to be cancelled for personal reasons affecting the speaker.