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Governance
How ERNs are approved?
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What are ERNs?
Why rare diseases?
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Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos and FAQ
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
News
See all articles
Propose an article for the website
Events
See all events
Propose a new event to be added to the website
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
Registry Onboarding Dashboard
My EURO-NMD
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Supporting partners contacts
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Supporting partners contacts
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Results per page:
Name
Institution
Country
A
Marc Abramowicz
Belgium
Peter Ashley
Euro-DyMA
United Kingdom
B
Ipek Badirgali
European Alliance of Neuromuscular Disorders Associations (EAMDA)
Türkiye
David Beeson
The Lily Foundation
Newcastle upon Tyne Hospitals NHS Foundation Trust
United Kingdom
Simone Birnbaum
Institute of Myology, APHP Pitié Salpêtrière, Paris
France
Stefen Brady
Oxford Neuromuscular Centre (Regional Hospital UK)
United Kingdom
C
Pierre Carlier
France
Emma Clement
Great Ormond Street Hospital, Foundation Trust (Regional Hospital UK)
United Kingdom
Sian Craig
Great Ormond Street Hospital, Foundation Trust (Regional Hospital UK)
United Kingdom
D
Trak Davis
Great Ormond Street Hospital, Foundation Trust (Regional Hospital UK)
United Kingdom
Jordi Diaz-Manera
John Walton Muscular Dystrophy Research Centre
United Kingdom
E
Louise Emerson
Great Ormond Street Hospital, Foundation Trust (Regional Hospital UK)
United Kingdom
