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About EURO-NMD
#ERNcare4Ua – Solidarity with Ukraine
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Board Members
Executive Committee
EURO-NMD Coordination team
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
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Who’s who in EURO-NMD
Continuous Monitoring
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
User Guide and other relevant resources
Patients
Patient Advisory Board
Overview of Patient Participation in EURO-NMD
Patient Representatives
Patient Journeys
Focusing on Improving Patient Health Outcomes: The Role of Patient Organisations
Patient tools & resources
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos and FAQ
CPMS days
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines-Consensus-CDST
Educational / Training School
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EURO-NMD endorsement of educational activities
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European Projects
Inter-ERN Groups
News & Events
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Registry
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding is ongoing
Registry Onboarding Dashboard
Data Entry Reimbursement Protocol
Home
About EURO-NMD
#ERNcare4Ua – Solidarity with Ukraine
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Board Members
Executive Committee
EURO-NMD Coordination team
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Continuous Monitoring
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
User Guide and other relevant resources
Patients
Patient Advisory Board
Overview of Patient Participation in EURO-NMD
Patient Representatives
Patient Journeys
Focusing on Improving Patient Health Outcomes: The Role of Patient Organisations
Patient tools & resources
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos and FAQ
CPMS days
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines-Consensus-CDST
Educational / Training School
Educational Videos
EURO-NMD endorsement of educational activities
Collaborations
European Projects
Inter-ERN Groups
News & Events
News
See all articles
Propose an article for the website
Events
See all events
Propose a new event to be added to the website
Newsletters
Registry
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding is ongoing
Registry Onboarding Dashboard
Data Entry Reimbursement Protocol
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Members contacts
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Results per page:
Name
Institution
Country
G
Marco Gualandris
Opedale Niguarda di Milano (including Nemo Clinical Centre)
Italy
Melania Guida
Azienda Ospedaliera Universitaria Pisana U.O.C. Neurologia
Italy
Melinda Gyenge
Institute of Myology, APHP Pitié Salpêtrière, Paris
France
H
Bine Haase
Jana Haberlova
Fakultní nemocnice v Motole – Prague
Czech Republic
Kinga Hadzsiev
University of Pecs (University Hospital Hungary)
Hungary
Katrin Hahn
CHARITÉ – UNIVERSITÄTSMEDIZIN BERLIN
SMA Europe e.V.
Germany
Karin Håkansson
Sahlgrenska Universitetssjukhuset – Gothenburg
Sweden
Mehrnaz Hamedani
IRCCS Ospedale Policlinico San Martino – Genova
Italy
Orla Hardiman
Ospideal Beaumont – Dublin
Ireland
Kristina Haugaa
Oslo Universitetssvkehus – Consortium
Norway
Ondrej Havlin
Fakultní Nemocnice Brno
