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Lise Connelly

- Patient reprensentative

Lise Connelly is married with 3 children, where her youngest has the same diagnose as her, Central Core disease mith RyR1. She is involved in work on exercise for children and adults with NMD, rehabilitation, educational needs of children and young people, and ethics. She is also involved in a multi-centre research project to develop a new muscle biopsy test for malignant hyperthermia in NMD.

Groups

Lise is involved in these different areas of the network...