Regdocs
This page allows the download of documents related to the EURO-NMD Registry Data sharing agreement…
October 3, 2023
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BREAKING NEWS: Open letter calling for EU institutions and Member States governments to stand by the European Reference Networks
The ERNs have come together and wrote an open letter addressed to the EU institutions…
IV. CONGRESS IN E-HEALTH & INNOVATION TO OVERCOME BARRIERS IN NEUROMUSCULAR DISEASES
The 4th eNMD conference will be held on 2nd – 4th November 2023 in Munich…
13th International Congress of Paediatric EMG, La Baule, France, on Nov 13-15, 2023
After a postponement due to pandemic-related reasons, the 13th International Congress of Paediatric EMG, which…
Neuromuscular/EMG Fellowship in Ottawa, Canada
The Ottawa Hospital NeuroMuscular Centre is accepting applications for 1 or 2 year funded Neuromuscular…
Call for proposals: Establishing novel approaches to improve clinical trials for rare and ultra-rare diseases
Under the Horizon Europe Framework Programme, a new two-stage call for proposals for “Establishing novel…
Announcement of New Grant Funding Opportunity for Rare Disease Research
The Food and Drug Administration’s (FDA) Office of Orphan Products Development (OOPD) is pleased to…
EURO-NMD ENDORSED: 8th Meeting “Mitochondrial Medicine – Therapeutic Development”, 18-20 March 2024
EURO-NMD ENDORSED: Mitochondrial Medicine – Therapeutic Development, the 8th meeting in this series will take…
EURO-NMD ENDORSED: Mitochondrial Medicine – The GENOMIT initiative.
Mitochondrial Medicine. The GENOMIT initiative in Pisa, Italy on November 17-18, 2023. Participants from: Italy,…
Registration has opened for the Inter-University Diploma of Myology (DIU de Myologie) 2023/2024 – in French
Registrations for the 2023-2024 session of the Inter-University Diploma of Myology (DIU de Myologie) are…
Consensus paper on management of seizures in mitochondrial patients
Child and adult neurologists from 4 European Reference Networks (MetabERN, ERN-RND, European Reference Network for…
CPMS Cases/”Panels” monitorization
In this page you find the excel files related to cases open and closed in…