12th edition of the European Conference on Rare Diseases and Orphan Products (ECRD)
The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe. By bringing together people with rare…
November 20, 2023
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MetabERN Questionnaire on the Treatment of Primary Mitochondrial Disorders with Vitamins and Cofactors
Primary mitochondrial disorders (PMD) continue to be without any curative or evidence-based therapies, but in…
EURO-NMD ENDORSED: Pisa Muscle Award and II Symposium Italian Clinical Group on FSHD
Pisa Muscle Award: what is changing in Myology: crossroads for new avenues & II Symposium…
ERN EURO-NMD presents : Muscle Month Webinar Series – January 2024
In partnership with ERN-RND for Rare Neurological Diseases & European Academy of Neurology, we are…
ICNMDigital 2023: 2-DAY ONLINE CONGRESS!
The ICNMD International Congress on Neuromuscular Diseases is organized on behalf of the Specialty Group…
Regdocs
This page allows the download of documents related to the EURO-NMD Registry Data sharing agreement…
BREAKING NEWS: Open letter calling for EU institutions and Member States governments to stand by the European Reference Networks
The ERNs have come together and wrote an open letter addressed to the EU institutions…
IV. CONGRESS IN E-HEALTH & INNOVATION TO OVERCOME BARRIERS IN NEUROMUSCULAR DISEASES
The 4th eNMD conference will be held on 2nd – 4th November 2023 in Munich…
13th International Congress of Paediatric EMG, La Baule, France, on Nov 13-15, 2023
After a postponement due to pandemic-related reasons, the 13th International Congress of Paediatric EMG, which…
Neuromuscular/EMG Fellowship in Ottawa, Canada
The Ottawa Hospital NeuroMuscular Centre is accepting applications for 1 or 2 year funded Neuromuscular…
Call for proposals: Establishing novel approaches to improve clinical trials for rare and ultra-rare diseases
Under the Horizon Europe Framework Programme, a new two-stage call for proposals for “Establishing novel…
Announcement of New Grant Funding Opportunity for Rare Disease Research
The Food and Drug Administration’s (FDA) Office of Orphan Products Development (OOPD) is pleased to…