Inter-ERN Molecular Therapeutic Board in Neurological Channelopathies
The “Inter-ERN Molecular Therapeutic Board in Neurological Channelopathies” represents an inter-ERN initiative, bringing together expertise…
April 8, 2024
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The Myology Institute is recruiting a clinical research physician (M/F)
Are you a doctor registered with the French National Medical Association (Conseil National de l’Ordre…
Summer School on Multidisciplinary Management of Neuromuscular Diseases – 12-14 September 2024
We are excited to announce the upcoming Summer School on Multidisciplinary Management of Neuromuscular Diseases…
The new CPMS 2.0 is arriving! Here is your opportunity to get to know it
The first release of CPMS 2.0 desktop version is approaching We are delighted to give…
EURO-NMD ENDORSED: XXIV National Congress of the Italian Association of Myology – 5 June 2024
Pre-Congress Course in ROME, 5 June 2024 The Course theme is Neuromuscular diagnosis: a multidisciplinary…
Requesting Letters of Intent (LOI) for the Individual Investigator Research Grant Awards
The RYR-1 Foundation is Requesting Letters of Intent (LOI) for the Individual Investigator Research Grant Awards Deadline: May…
Gene Therapy webinar series
General information We’re happy to announce our upcoming webinar series on Gene Therapy co-organized by…
7th ERN EURO-NMD Annual Meeting presentations
Our annual meeting slides, focused on advancements in the neuromuscular field, are now live. Dive…
EURO-NMD ENDORSED: 4th Baltic School of Neuro-Myology, Tallinn, Estonia, 23-24. August 2024
The Educational Board of Euro-NMD has endorsed the 4th Baltic School of Neuro-Myology, that will…
Today is Rare Disease Day and we are stronger together
EURO-NMD supports Rare Disease Day and celebrates the strength of our patients and the dedication…
Registry Hub Paper out now!
The EURO-NMD Registry paper has just been published on the Orphanet Journal of Rare Diseases.…
Registry Onboarding is ongoing
Registry Onboarding is ongoing The ERN EURO-NMD Registry Hub intends to collect data from the…