ERNs: a sucess story for patients living with a rare disease
January 24, 2025
Home >
A A A
All posts
Search criteria
Read the post
For an EU commitment to tackling Rare Diseases – RESULTS OF CONFERENCE (Budapest 2024)
The conference aimed to shape a European policy framework for rare diseases, integrating strategies in…
EURO-NMD Webinar Series on Dysimmune and inflammatory neuropathies! (Replay available now!)
The ERN EURO-NMD Working Group on Peripheral Nerve Diseases is pleased to present a Webinar…
“Survey on unmet needs in personalised medicine management and the potential of personalised health technologies for healthcare professionals”
We have received through the ERICA project a request from the EC do promote this…
Screen4Care launches recruitment for Newborn Screening
The Screen4Care project, an innovative European research initiative, has launched recruitment for its newborn screening…
AFM Téléthon: Calls for proposals
Through its annual calls for proposals, each year AFM-Telethon supports new research projects in France…
ERN EURO-NMD Retrospective of 2024
A Year of Growth and Impact As 2024 approaches its end, we are proud to…
Medical Research Assistant position open at CRM (G. Bonne)
Within the EU-Horizon Europe CoFund Project “ERDERA, European Rare Diseases Research Alliance”, a medical research…
Obituary: Prof Michel Fardeau
It is with immense sadness that we announce that Professor Michel Fardeau passed away on…
I want access to CPMS 2.0 and I had no access to CPMS 1.0. What should I do?
CPMS 2.0 is easy to use and navigate and works mainly as a chat like…
Common data elements for Arthrogryposis Multiplex Congenita: An international framework
Aim: To facilitate multisite studies and international clinical research, this study aimed to identify consensus-based, standardized…
ERDERA Pre-Announces 2025 Joint Transnational Call for Proposals on Rare Disease Therapies
The European Rare Diseases Research Alliance (ERDERA) is excited to announce the upcoming launch of…