EURO-NMD ENDORSED: 4th Baltic School of Neuro-Myology, Tallinn, Estonia, 23-24. August 2024
The Educational Board of Euro-NMD has endorsed the 4th Baltic School of Neuro-Myology, that will…
February 29, 2024
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Today is Rare Disease Day and we are stronger together
EURO-NMD supports Rare Disease Day and celebrates the strength of our patients and the dedication…
Registry Hub Paper out now!
The EURO-NMD Registry paper has just been published on the Orphanet Journal of Rare Diseases.…
Registry Onboarding has started
Registry Onboarding has started The ERN EURO-NMD Registry Hub intends to collect data from the…
Registry Hub for Rare Neuromuscular Diseases
Patient centered and interoperable registry hub for Rare Neuromuscular Diseases A recognised challenge for rare…
Post-doctoral position in Therapy Development for Rare Diseases in Barcelona!
You will join our laboratory of Translational Research in Neuromuscular Diseases at the Institut de…
EURO-NMD Survey: Bone strength in neuromuscular disorders
Dear EURO-NMD Healthcare Providers, We are pleased to invite you to participate in the survey…
Launch of the First European Registry for all Rare Neuromuscular Diseases
Launch of the First European Registry for all Rare Neuromuscular Diseases. The onboarding process of…
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AFM-Telethon: Call for proposals 2024
Through its annual calls for proposals, each year AFM-Telethon supports new research projects in France…
Веб-сторінка українською мовою для медичних працівників
European Reference Network for Rare Neuromuscular Diseases EURO-NMD пропонує навчальні матеріали для медичних працівників. Ми…
12th edition of the European Conference on Rare Diseases and Orphan Products (ECRD)
The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe. By bringing together people with rare…