EURO-NMD ENDORSED: XXIV National Congress of the Italian Association of Myology – 5 June 2024
Pre-Congress Course in ROME, 5 June 2024 The Course theme is Neuromuscular diagnosis: a multidisciplinary…
March 13, 2024
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Requesting Letters of Intent (LOI) for the Individual Investigator Research Grant Awards
The RYR-1 Foundation is Requesting Letters of Intent (LOI) for the Individual Investigator Research Grant Awards Deadline: May…
Gene Therapy webinar series
General information We’re happy to announce our upcoming webinar series on Gene Therapy co-organized by…
7th ERN EURO-NMD Annual Meeting presentations
Our annual meeting slides, focused on advancements in the neuromuscular field, are now live. Dive…
EURO-NMD ENDORSED: 4th Baltic School of Neuro-Myology, Tallinn, Estonia, 23-24. August 2024
The Educational Board of Euro-NMD has endorsed the 4th Baltic School of Neuro-Myology, that will…
Today is Rare Disease Day and we are stronger together
EURO-NMD supports Rare Disease Day and celebrates the strength of our patients and the dedication…
Registry Hub Paper out now!
The EURO-NMD Registry paper has just been published on the Orphanet Journal of Rare Diseases.…
Registry Onboarding is ongoing
Registry Onboarding is ongoing The ERN EURO-NMD Registry Hub intends to collect data from the…
Registry Hub for Rare Neuromuscular Diseases
Patient centered and interoperable registry hub for Rare Neuromuscular Diseases A recognised challenge for rare…
Post-doctoral position in Therapy Development for Rare Diseases in Barcelona!
You will join our laboratory of Translational Research in Neuromuscular Diseases at the Institut de…
EURO-NMD Survey: Bone strength in neuromuscular disorders
Dear EURO-NMD Healthcare Providers, We are pleased to invite you to participate in the survey…
Launch of the First European Registry for all Rare Neuromuscular Diseases
Launch of the First European Registry for all Rare Neuromuscular Diseases. The onboarding process of…