The Duchenne Emergency & Capacity Building Program was set up by the World Duchenne Organization and…
The International Rare Diseases Research Consortium (IRDiRC) has announced the opening of two new Task Forces:…
The EJP-RD project’s 3rd Call for Research Training Workshops is now open (27. January-7. March…
A new Euro-NMD publication is now available preprint on The Orphanet Journal of Rare Diseases…
Despite the extraordinary circumstances of 2020, Euro-NMD has consolidated as a network for neuromuscular disorders.…
The 25th International Congress of the World Muscle Society will be held virtually, a first…
Friday June 26 – Today, over 20 project partners from 7 organizations participated in the…
Research is at the heart of solutions for all patients. However, it is not always…
L’AFM-Téléthon, Association de Patients Française, et FILNEMUS , la Filière Neuromusculaire Française have developed a…
ENMC highlights workshop report In 2018, ENMC held a special workshop on how to involve…
The New England Journal of Medicine have recently published this special report on Renin–Angiotensin–Aldosterone System…
EURORDIS urges immediate action and proposes concrete solutions 31 March, Paris – EURORDIS-Rare Diseases Europe…