Call for Volunteers – EMQN Assessors for EQA Scheme Neuromuscular Disorders (NMDs)
Exciting opportunity to join the EMQN Team as a Volunteer Assessor for the new Neuromuscular…
April 7, 2025
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EURO-NMD Webinar Series: All about FSHD – May 2025
EURO-NMD is pleased to announce a dedicated 4-episode webinar series on Facioscapulohumeral Muscular Dystrophy (FSHD)…
8th ERN EURO-NMD Annual Meeting presentations
The 8th ERN EURO-NMD Annual Meeting took place on March 5-7, 2025, at Essen University…
CPMS 2.0 training for clinicians from 12th March 2025 onwards!
Dear user of the CPMS 2.0, With the migration of all data from the old…
Three new positions open at the University of Cambridge Mitochondrial Research Team
Join a world-class team led by Patrick Chinnery and Rita Horvath dedicated to mitochondrial diseases…
For an EU commitment to tackling Rare Diseases – RESULTS OF CONFERENCE (Budapest 2024)
The conference aimed to shape a European policy framework for rare diseases, integrating strategies in…
EURO-NMD Webinar Series on Dysimmune and inflammatory neuropathies! (Replay available now!)
The ERN EURO-NMD Working Group on Peripheral Nerve Diseases is pleased to present a Webinar…
“Survey on unmet needs in personalised medicine management and the potential of personalised health technologies for healthcare professionals”
We have received through the ERICA project a request from the EC do promote this…
Screen4Care launches recruitment for Newborn Screening
The Screen4Care project, an innovative European research initiative, has launched recruitment for its newborn screening…
AFM Téléthon: Calls for proposals
Through its annual calls for proposals, each year AFM-Telethon supports new research projects in France…
ERN EURO-NMD Retrospective of 2024
A Year of Growth and Impact As 2024 approaches its end, we are proud to…