July’s Summer School Webinar Series
The Euro-NMD webinar series of July will be devoted to some of the lectures given…
May 25, 2021
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AcadeMYO
AcadeMYO is the digital version of the renowned Summer School of Myology that has been…
Survey on education needs in rare Neuromuscular Diseases
The European Reference Network (ERN) on Rare Neuromuscular Diseases (EURO-NMD) is aiming at remodelling its…
The Institute of Myology is recruiting a Clinical Research Physician
THE INSTITUTE OF MYOLOGY Located in Paris in the heart of the largest European hospital,…
Muscle Atlas: introduction of a new resource
The Muscle Atlas is the first muscle image database to accelerate research, diagnosis and therapeutic…
The semestral Euro-NMD Registry Hub March 2021 newsletter is out
Progress has been made with the EURO-NMD Registry Hub project, as the team is working…
Rare Diseases Day 2021
Rare Disease Day 2021 will take place on Sunday 28th February and around the world many awareness raising events…
ERN Euro-NMD Expert Group for Guidelines Development
The European Commission has started a Project that involves Euro-NMD for developing Guidelines for Neuromuscular…
World Duchenne Organization, together with the Duchenne Data Foundation, started their Duchenne Emergency & Capacity Building Program
The Duchenne Emergency & Capacity Building Program was set up by the World Duchenne Organization and…
IRDiRC announcement of two new Task Forces
The International Rare Diseases Research Consortium (IRDiRC) has announced the opening of two new Task Forces:…
EJP-RD project’s 3rd Call for Research Training Workshops is now open
The EJP-RD project’s 3rd Call for Research Training Workshops is now open (27. January-7. March…
Survey on patients organisations’ knowledge and position paper on screening for inherited neuromuscular diseases in Europe
A new Euro-NMD publication is now available preprint on The Orphanet Journal of Rare Diseases…