16 June 2025: First CPMS Day – A New Collaborative Initiative
What Are CPMS Days? CPMS Days are structured, theme-based case discussions hosted within the Clinical…
May 21, 2025
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PhD Opportunity within the ENTRY-DM Project – Decision-Making in Myotonic Dystrophy (DM1)
As part of the ENTRY-DM network—an ambitious European research programme focused on advancing antisense oligonucleotide…
9th Meeting Mitochondrial Medicine – Therapeutic Development
EURO-NMD is pleased to endorse the 9th meeting in the international series on mitochondrial disease…
CPMS Workshops: a new way to learn about CPMS 2.0
We are excited to announce a series of dedicated workshops showcasing the newly released Clinical…
Data Entry Reimbursement Protocol
As part of the European Commission (EC) support for the functioning of the ERN registries…
Call for Volunteers – EMQN Assessors for EQA Scheme Neuromuscular Disorders (NMDs)
Exciting opportunity to join the EMQN Team as a Volunteer Assessor for the new Neuromuscular…
EURO-NMD Webinar Series: All about FSHD – May 2025
EURO-NMD is pleased to announce a dedicated 4-episode webinar series on Facioscapulohumeral Muscular Dystrophy (FSHD)…
8th ERN EURO-NMD Annual Meeting presentations
The 8th ERN EURO-NMD Annual Meeting took place on March 5-7, 2025, at Essen University…
CPMS 2.0 training for clinicians from 12th March 2025 onwards!
Dear user of the CPMS 2.0, With the migration of all data from the old…
Three new positions open at the University of Cambridge Mitochondrial Research Team
Join a world-class team led by Patrick Chinnery and Rita Horvath dedicated to mitochondrial diseases…
For an EU commitment to tackling Rare Diseases – RESULTS OF CONFERENCE (Budapest 2024)
The conference aimed to shape a European policy framework for rare diseases, integrating strategies in…