EURO-NMD provide educational webinars on a monthly basis to increase the knowledge around different specialist areas related to the neuromuscular field. Each webinar lasts approximately one hour with the opportunity for viewers to ask questions on the subject area.
The recordings and slides will be available on the EURO-NMD website for viewers to refer to or in case someone who has expressed an interest is unable to make the live webinar.
As part of a close working relationship between EURO-NMD and RD-Connect three informative webinars were organised for those researchers involved in ERNs. Recording of these three webinars can now be found below.
We are also collaborating with the European Reference Network for Rare Neurological diseases (ERN-RND) and the European Academy of Neurology (EAN). You can also view webinars from ERN-RND listed below (and on their website by clicking here) and we will include more information on how to register for these webinars in due course.
If you have a particular subject you would like to present about please contact Chloe Blewitt who will find a suitable date and time.
We currently have some flexible time slots available for any relevant webinars.
Next webinar will be held on 21 November 2019
Myotonic Dystrophies
organised by EURO-NMD
This webinar is scheduled to take place – 13:00-14:00 (London) / 14:00-15:00 (Paris)
It will be presented by Pr. Benedikt Schoser, Friedrich-Baur-Institut, Munich, Germany
We are in the process of organising this webinar and as such times may change slightly.
Further details of how to connect will be available here in due course once we have things finalised.
Future webinars
28 November 2019 – Mitochondrial Donation – organised by EURO-NMD
13:00-14:00 GMT / 14:00-15:00 CET
This webinar will be presented by Professor Robert McFarland from Newcastle University in the UK.
We are in the process of organising this webinar and as such times may change slightly.
Further details of how to connect will be available here in due course once we have things finalised.
3 December 2019 – Neuroacanthocytosis syndromes – organised by ERN-RND
The webinar will be presented by Adrian Danek, Ludwig Maximilian University, Cognitive Neurology, Munich, Germany.
We are in the process of organising this webinar and as such times may change slightly.
Further details of how to connect will be available here in due course once we have things finalised.
5 December 2019 – Classification of inflammatory myopathies – organised by EURO-NMD
This webinar is being organised to take place at 13:00-14:00 (London) 14:00-15:00 (Paris) on 5th December however this may be subject to change so we recommend checking nearer the time.
Pr. Olivier Benveniste will be delivering this webinar.
Further details will be available in due course once we have finalised arrangements.
17 December 2019 – Non-progressive congenital ataxia – organised by ERN-RND
The webianr will be presented by Alfons Macaya, Hospital Universitari Vall d’Hebron, Paediatric Neurology, Barcelona, Spain
We are in the process of organising this webinar and as such times may change slightly.
Further details of how to connect will be available here in due course once we have things finalised.
21 January 2020 – Immune – mediated choreas – organised by ERN-RND
The webinar will be presented by Jan Lewerenz, University Hospital Ulm, Germany
We are in the process of organising this webinar and as such times may change slightly.
Further details of how to connect will be available here in due course once we have things finalised.
Past webinars
Below are details of the past webinars we have organised. Where possible we have included a recording of the webinar in this section.
5 November 2019 – Clinical Features of Ataxia – organised by ERN-RND
The webinar will be presented by Bart van de Warrenburg, Radboud University Medical Center, Nijmegen, the Netherlands who is an expert on ataxia and has special interest in rare and genetic movement disorders.
This is a joint webinar series by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN). The speaker is neurologist from the Radboud University Medical Centre in Nijmegen, the Netherlands.
You can register your interest for the webinar by clicking here!
24 October 2019 – Diagnostic imaging in NMD: the basics – organised by EURO-NMD
This webinar was delivered by Pierre Carlier from the Institut de Myologie on 24th October 2019.
23 May 2019 – CPMS Webinar: FAQ & A – organised by EURO-NMD
The CPMS webinar was presented by the CPMS Support DG SANTE looked at questions which are frequently asked by CPMS users.
The webinar took place on 23rd May at 14:00 (CET)
Download a recording of this webinar.
18 April 2019 – Amyloid Neuropathies: update in 2019 – organised by EURO-NMD
This webinar was delivered on Thursday 18th April 2019 by Professor David Adams from Bicêtre, Paris.
EURO-NMD delivered a webinar presented by Dr Emilien Delmont on the subject of Diagnosis and treatment of CIDP associated to antibodies against node of Ranvier, the details are below.
The webinar took place on Thursday 21st March 2019 at 13:00-14:00 (GMT).
The webinar was recorded and is now available below.
Marco Roos, Leiden University Medical Center, The Netherlands
Wednesday 26 September 2018
This video will explain what makes data Findable, Accessible, Interoperable and Reusable (FAIR) and why it is critical that different types of information, such as medical records, clinical and phenotypic data, test results, sequencing data and biosample details are made FAIR at the source.
Mary Wang, Fondazione Telethon, Milan, Italy
Tuesday 18 September 2018
This video demonstrates how to use two tools that will help you quickly identify patient registries in Europe and beyond that hold data on your disease of interest. They also let you find rare disease biobanks and browse their sample collections, with detailed information about each individual sample.
Steven Laurie, Centro Nacional de Análisis Genómico, Barcelona, Spain
Thursday 6th September 2018
This video will demonstrate how to use the powerful and user-friendly analysis tools in the GPAP to interpret, filter and prioritise your variants to identify disease-causing mutations and help diagnose your rare disease patients. The system also allows you to compare your data with data submitted by other members of the RD-Connect community, and further afield, to find confirmatory cases for your candidate variants.
Logistical information
EURO-NMD use Zoom Webinar software to ensure the webinars run smoothly for the one hour duration. Some of the features that Zoom offer are:
- Up to 100 live participants
- Mute/Unmute options
- Screen sharing
- Webinar recording
When performing webinars Chloe Blewitt will be present to assist if there are any technical issues. There will also be the offer of a 5-10 minute session before the webinar so the presenter can learn the different controls and options and so they have adequate time to set up.
