Webinars

EURO-NMD provide educational webinars on a monthly basis to increase the knowledge around different specialist areas related to the neuromuscular field. Each webinar lasts approximately one hour with the opportunity for viewers to ask questions on the subject area. We are also collaborating with the European Reference Network for Rare Neurological Diseases (ERN-RND) and the European Academy of Neurology (EAN). If you have a particular subject you would like to present about please contact Elisabeth Avidi-Muelle or Antonio Atalaia who will find a suitable date and time.

Feedback of the 2023 EURO-NMD webinars


Next webinar will be held on 16 February 2023

Caveolae and Bin1 form ring-shaped platforms for T-tubule initiation

, organised by EURO-NMD,

Stéphane Vassilopoulos is “Directeur de Recherche” at the “Centre de Recherche en Myologie”, the unit 974 of INSERM in Paris. In 2007 he defended a PhD thesis on “Role of Triadin isoforms in muscle cell physiology”, under advisor Dr. Isabelle Marty and presented at Université Grenoble Alpes (UGA), CEA, Inserm Grenoble France. He currently has a particular interest in Clarithrin  He will share some of his recent work that has potential clinical implications for managing these patients.

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Future webinars


BASIC WEBINARS SERIES

THEME: Muscle hyperexcitability and cramps

PRESENTER: Dr. Federica Montagnese (Friedrich Baur Institute, Ludwig Maximilians University, Munchen, Germany)

TIMESLOT: 9th March 2023 at 16:00 CET

BIOSKETCH:

Dr. med. Federica Montagnese qualified as MD and Neurologist at the University of Messina, Italy. Since 2017, she works as post-doctoral fellow at the Friedrich-Baur Institute, Department of Neurology, Ludwig-Maximilian University Munich, Germany. Here, she obtained the certification as neurophysiologist and works in the neuromuscular outpatient clinic. Her main research interests focus on the clinical and myopathological aspects of metabolic myopathies, myositis, myotonic syndromes and muscular dystrophies. She contributes to the maintenance of the national registries for myotonic dystrophies and facio-scapulo-humeral muscular dystrophy. She is part of the management group of the EAN Subspecialty Panel “Muscle disorders”.

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THEME: Inflammatory Myopathies

PRESENTER: Prof. Werner Stenzel (Charité – Universitätsmedizin Berlin, Germany)

TIMESLOT: Thursday, April 6, 2023 at 16:00 Paris Time

BIOSKETCH: “I am a Neuropathologist and Myopathologist and board certified in general Neurology and in Neuropathology. Currently I am the head of the neuromuscular diagnostic and research unit in Berlin at the Charité Hospital. I also act as co-Director of the German reference center of Neuromuscular diseases. My primary research interest is in juvenile and adult forms of Myositis and inflammatory nerve pathologies. Several colleagues from all over the world have spent some time with us in the lab and in diagnostics as well as in research. It has always been a pleasure to welcome guests but also, it is my declared aim to support their research. I also have a focus in ultrastructural myopathology, which we use in diagnostic routine as well as in research questions related to the identification and characterization of morphological features. In addition, I am an Associated Editor of the journal Neuromuscular disorders (NMD), and an Executive Editor for Neuropathology and applied Neuropathology (NAN). 

My commitments also extend to the European Neuromuscular Centre where I am a member of the research committee. I have organized several workshops, and I have participated in numerous ones. 

The 19th WMS meeting in 2014 was organized by Hans-Hilmar Goebel, Arpad von Moers, and myself as a local chair in Berlin. I have close scientific and society-related bonds to numerous individuals in the society.”

 

Dr. Werner Stenzel 

Professor of Neuropathology and Neuroimmunology 

Department of Neuropathology 

Charité – Universitätsmedizin 

10 117 BERLIN, Germany 

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THEME: Fatigue in Neuromuscular Disorders

PRESENTER: Dr. Nicole B.M. Voet (Radboud University Medical Center, the Netherlands)

TIMESLOT: Thursday, April 27, 2023 at 16:00 Paris Time

BIOSKETCH: Nicole Voet works at the muscular diseases outpatient clinic at Klimmendaal rehabilitation center in Arnhem, and at the Radboudumc Rehabilitation Department. At both locations, she sees patients with slowly progressive neuromuscular disorders, in particular patients with Facioscapulohumeral dystrophy (FSHD). In 2018, the rehabilitation and neurology departments at Radboudumc jointly launched the multidisciplinary FSHD outpatient clinic, where patients from across the country are seen for diagnostics and advice.

In 2016, she defended her PhD thesis, which focused on the effect of aerobic exercise and cognitive behavioral therapy in patients with FSHD. She received the international PhD Award Rehabilitation Medicine in 2017 for her dissertation. Her current scientific research focuses partly on improving the quality of life of patients with FSHD and partly on further analyzing fatigue and the effect of exercise and exercise in patients with neuromuscular disease.

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BASIC WEBINARS SERIES

THEME: Floppy child

PRESENTER: Dr Ulrike Schara-Schmidt (University Clinics Essen, Essen, Germany)

TIMESLOT: 4th May 2023 at 16:00 CET

BIOSKETCH: Ulrike Schara-Schmidt is a paediatric neurologist at the university hospital in Essen, Germany. She has a long-standing clinical interest in muscle disorders and CMS.

Ulrike has focussed her clinical and research activities on neuromuscular disorders, especially in infants, children and adolescents. She has published work on childhood disorders including congenital myopathies, muscular dystrophies, mitochondrial disorders and congenital myasthenic syndromes, juvenile Myasthenia gravis. Her research relates to both clinical as well as translational aspects to improve standards of diagnosis and care and to develop new treatments.

She is currently heading a major neuromuscular centre in Essen, Germany, and has participated in most academic and industry sponsored clinical trials for DMD and SMA. She works closely with patient organizations in Germany (Deutsche Gesellschaft fuer Muskelkranke, Deutsche Myasthenie Gesellschaft, actionbenniundCo) and she collaborates with many scientists in national and international networks such as the MD-NET and TREAT-NMD.

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Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).

Delivered by Ana Sofia Costa (RWTH-University Hospital Aachen, Germany)

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Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).

Delivered by Tim van Langenhove (University Hospital Ghent, Belgium)

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Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).

Delivered by Jörn-Sven Kühl (University Hospital Leipzig, Germany) 

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Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).

Delivered by Sarah Tabrizi (UCL Queen Square Institute of Neurology, London, UK)

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BASIC WEBINARS SERIES

THEME: Cardiac Involvement in Neuromuscular Diseases

PRESENTER: Prof. Karim Wahbi, PhD, MD (APHP Hospital Cochin, Paris, France)

TIMESLOT: July, 6th 2023 at 16:00 CET

BIOSKETCH: Karim Wahbi is a University Professor and Hospital Practitioner at the University of Paris. He coordinates the Cochin Hospital site of the Reference Center for Neuromuscular Diseases North/East/Ile de France, dedicated to the management of cardiomyopathies associated with neuromuscular and metabolic diseases, particularly mitochondrial diseases. It is a founding member of the Paris Myocardial Institute (IMyP). He coordinates the care, teaching and research activities around the theme of the Cochin Reference Center and more broadly within the IMyP for dilated cardiomyopathies. He is involved in the transition of care from children to adults in association with Professor Bonnet’s team and consults in the genetics department of the Georges Pompidou European Hospital directed by Professor Jeunemaitre for the genetic exploration of cardiomyopathies.

Karim Wahbi coordinates several national and international projects, including registries and therapeutic trials on neuromuscular and mitochondrial cardiomyopathies, notably within FILNEMUS, the neuromuscular care network. He regularly communicates the work of his team in national and international scientific meetings in cardiology and neurology.

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Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).

Delivered by Kathrin Reetz (RWTH-University Hospital Aachen, Germany)

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Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).

Delivered by Lize Jiskoot (Erasmus Medical Center Rotterdam, Netherlands)

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Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).

Delivered by Caroline Sevin and Nicole Wolf (Reference Centre for Leukodystrophies, University Hospital Bicetre, Paris, France & Amsterdam Leukodystrophy Center, VUMC- Amsterdam University Medical Centers, Netherlands)

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Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).

Delivered by Lucia Laugwitz (University Hospital Tübingen, Germany)

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THEME: Pathology of Peripheral Nerves

PRESENTER: Prof. Dr. Joachim Weis (University Hospital RWTH Aachen, Germany)

TIMESLOT: 9 nov. 2023 16:00 CET

BIOSKETCH: Dr. Joachim Weis is a full Professor and Director of the Institute of Neuropathology at RWTH University Hospital, Aachen. He is head of the Reference Center for Neuromuscular Diseases of the German Society of Neuropathology and Neuroanatomy (DGNN) and elected member of the Review Board “Neurosciences”, German Research Foundation (DFG). He is also Deputy member of the Board of Supervisors, RWTH University Hospital.

His research is focused on pathomechanisms of neuromuscular and neurodegenerative diseases including protective and regenerative processes with a special focus on the role of endoplasmic reticulum pathology and disturbed proteostasis and autophagy. 

The methods employed include clinicopathological investigations of biopsy and autopsy tissues of human patients which are combined with basic research approaches using cell culture and mouse models, providing a unifying translational view. Genotype-phenotype correlations in hereditary neuromuscular disorders are performed in cooperation with clinical and genetic partners. 

Email: jweis@ukaachen.de 

Web site including publications: https://www.ukaachen.de/en/clinics-institutes/title-en-64/dear-visitor/ 

 

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Past EURO-NMD Webinars


Dysphagia in Neuromuscular Diseases

BASIC WEBINARS SERIESTHEME: Dysphagia in Neuromuscular DiseasesPRESENTER: Prof. Marianne de Visser (Academic Medical Centre, Amsterdam, NL)TIMESLOT: 22 December 2022 at 16:00 Paris time BIOSKETCH: Marianne has been the leader of the...

External Ophtalmoplegia

BASIC WEBINARS SERIESTHEME: External OphtalmoplegiaPRESENTER: Dr. Carmen Paradas Lopez (Hospital Universitario Virgen del Rocio ​...

Quality of life in ​Neuromuscular Disease

Pre-recorded webinar in May 2022, delivered by Robert Pangalila (Rijndam Rehabilitation Clinic and Erasmus University Medical Centre, the Netherlands) on 13 October 2022 at 16:00 Paris time. The speaker will...

Mitochondrial Optical Neuropathies

Delivered by Dr. Chiara la Morgia (Institute of Neurological Sciences of Bologna, Italy, Italy) on the 29 September 2022 at 16:00 Paris TimeThis is a webinar part of a “World...

Mitochondrial Genetics

This is a webinar part of a “World Mitochondrial Awareness Webinar Series” organized by EURO-NMD, EAN, ERN-RND and ERN-Epicare.

Delivered by Costanza Lamperti (Istituto Neurologico C.Besta, Milan, Italy) on the...

Mitochondrial Movement Disorders

Delivered by Dr. Chiara la Morgia (Institute of Neurological Sciences of Bologna, Italy, Italy) on the 21 September 2022 at 16:00 Paris TimeThis is a webinar part of a “World...

Mitochondrial Epilepsy

Delivered by Michelangelo Mancuso (Neurological Institute of the University of Pisa, Italy) on the 01 September 2022 at 16:00 Paris...

Myotonic dystrophy type 1: from DNA repeat expansion and toxic RNA to the development of new therapeutic approaches.

Delivered by Mario Gomes-Pereira & Arnaud Klein (Myology Research Centre, Inserm, Sorbonne University, Institute of Myology, Paris) on the 07 July 2022 at 16:00 Paris Time Mario Gomes-Pereira has been working...

Jaw malformations and teeth malpositions in Neuromuscular Disease

Webinar delivered by Prof. Dr. Stavros Kiliardis, PhD - University of Geneva & University of Bern, Switzerland
Dr. Stavros Kiliaridis is Professor Emeritus, University of Geneva, and adjunct Professor at the University...

Primary Mitochondrial Myopathies

 Delivered by Prof. Michelangelo MancusoProf. Michelangelo Mancuso is a specialist in Neurology.Graduated in Medicine in 1996, he specialized at the University of Pisa in 2000 and completed...


Newborn screening in leukodystrophies

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of...

Advanced therapies and clinical trials in Leukodystrophies

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of...

Neuropsychological assessment in primary progressive aphasia – recommendations and pitfalls in clinical practice

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of...

Friedreich Ataxia

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of...

Huntington disease: new insights into molecular pathogenesis and therapeutic opportunities

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of...

Haematopoietic Stem Cell Transplantion in Leukodystrophies

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of...

Frontotemporal dementia vs. primary psychiatric disorders

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of...

Non-pharmacological approaches to treatment in svPPA

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of...

Telerehabilitation in RND: an update

3-4 pm CETEducational webinars on Neurorehabilitation jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN EURO-NMD) and the European Academy of Neurology (EAN)....

DBS in Dystonia – Targets, programming and therapeutic challenges

Recording coming soon3-4 pm CETThis webinar is part of the educational webinar series on rare neurological, neuromuscular and movement disorders, neurorehabilitation and advanced therapies jointly organized by the European Reference...

Update in synuclein PET tracer development

3-4 pm CETThis webinar is part of the series of educational webinars jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN EURO-NMD) and...

Use of Biomarkers to monitor the presymptomatic phase of Genetic FTD: research advances for clinical trial readiness

3-4 pm CETEducational webinars on RARE neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN EuroNMD) and the...
 
 

Logistical information

EURO-NMD use Zoom Webinar software to ensure the webinars run smoothly for the one hour duration. Some of the features that Zoom offer are:
  • Up to 500 live participants. Participants can use the Chat tool to exchange between them. They should use the Q&A tool to put questions to the panelist and these will be answered at the end. You as a participant will be offered the possibility of voicing your question, but if you prefer the moderator will read it loud and the panelist will answer it.
  • The panelists have Mute/Unmute options
  • The panelists are able to share their screen
  • Webinar recording is done and it will be made available online to watch on-demand both at our website https://ern-euro-nmd.eu/webinars/ and on the EURO-NMD YouTube Channel.
When performing webinars one or more members from the Coordination Team will be present to assist if there are any technical issues. There will also be the offer of a 5-10 minute session before the webinar so the presenter can learn the different controls and options and so they have adequate time to set up.

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern