The Executive Committee is responsible for the overall policy and strategic direction of the network whilst overseeing activities and progress. The committee also works closely with the Board of Heatlhcare Providers to ensure any decisions made are implemented fully and subsequently promoted to ensure maximum effectiveness.

The committee is also responsible for the establishment of contacts with industry and regulatory agencies and the developement of a viable sustainability strategy for the network.
 


 

Executive Committee Members

 

Alessandra Ferlini

University Hospital St. Anna
Italy

Bjarne Udd

Tampere Neuromuscular Center, Tampere University Hospital
Finland

Davide Pareyson

Fondazione IRCCS, Istituto Neurologico C.Besta
Italy

Hanns-Lochmuller

Hanns Lochmüller

Medical Center - University of Freiburg
Germany

Andoni Urtizberea

J. Andoni Urtizberea

University Hospital Raymond-Poincaré APHP
France

Jan Kirschner

University Hospital Bonn
Germany

Leonard van den Berg

University Medical Centre Utrecht
Netherlands

Marianne de Visser

Netherlands

Peter Van den Bergh

University Hospital St-Luc
Belgium

Rita Horvath

John Walton Muscular Dystrophy Research Centre
UK

Teresinha Evangelista – EURO-NMD Coordinator

Assistance Public Hopitaux de Paris
France