The clinical patient management system or CPMS as it is often referred to will be critical to patient care, diagnosis and treatment as well as future clinical research.
This is a huge undertaking and there is no such multinational clinical system currently in existence. We will keep you informed via our various communications channels as to its development, progression and major updates as the system evolves to meet the needs of its users.
Initially the focus will on diagnosis and treatment for patients by providing tools for collaboration, virtual consultations.
(Please note that access to this system is available only for members of our ERN)
To find out more about the thinking behind the platform and how we expect it to work
and be used in the future the Commission have produced this short video.