The Board of the ERN was established in accordance with the procedure stipulated by the Commission Delegated Decision. It includes one representative from each healthcare provider (full member) of EURO-NMD and one patient representative elected by the Patient Advisory Board. Teresinha Evangelista, Coordinator of the ERN chairs the Board.

Consisting of representatives from 61 healthcare providers from across Europe the Board is the primary decision making body accountable for fostering collaboration; removing obstacles to the network successful functioning; and maintaining the focus of the network on the agreed scope, outcomes and benefits.


Adriano Chio

Azienda Ospedaliero Universitaria Città della Salute e della Scienza
Italy

Aleksandra Nadaj Pakleza

University Hospital of Strasbourg - Neuromuscular Centre at Hautepierre Hospital
France

Alessandra Ferlini

University Hospital St. Anna
Italy

Andrés Nascimento

Hospital Sant Juan de Déu Universidad de Barcelona
Spain

Angela Kaindl

Charité - Universitätsmedizin Berlin
Germany

Anna Kostera-Pruszczyk

SPCSK, Medical University of Warsaw
Poland

Anneke van der Kooi

Academic Medical Centre
Netherlands

Ans van der Ploeg

Erasmus MC University Medical Center
Netherlands

Antonio Federico

Azienda Ospedaliera Universitaria Senese
Italy

Antonio Toscano

University of Messina
Italy

Baziel van Engelen

Radboud University Medical Center
Netherlands

Bela Melegh

University of Pécs
Hungary

Bjarne Udd

Tampere Neuromuscular Center, Tampere University Hospital
Finland

Borut Peterlin

University Medical Center Ljubljana
Slovenia

Carlo Minetti

Gaslini Institute
Italy

Carlos Casanovas

Hospital Universitari de Bellvitge
Spain

Carmen Paradas

Hospital Universitario Virgen del Rocío / IBiS
Spain

Cornelia Kornblum - ERN EURO-NMD

Cornelia Kornblum

University Hospital Bonn
Germany

Cristina Dominguez Gonzalez

Hospital Universitario 12 de Octubre
Spain

Prof David Adams

David Adams

Hôpital Bicêtre, Hôpitaux universitaires Paris Sud, AP-HP
France

Davide Pareyson

Fondazione IRCCS, Istituto Neurologico C.Besta
Italy

Elena Pegoraro

Azienda Ospedaliera Padova (AOP)
Italy

Enrico Bertini

Ospedale Pediatrico Bambino Gesù-Bambino Gesù Children’s Hospital
Italy

Eugenio Maria Mercuri

Fondazione Policlinico Universitario A. Gemelli
Italy

Fabrizio Leigheb

Azienda Ospedaliero Universitaria "Maggiore della Caritá" di Novara
Italy

Gabriele Siciliano

Azienda Ospedaliero-Universitaria Pisana, U.O.C. Neurologia
Italy

Gauthier Remiche

Centre de Référence Neuromusculaire Erasme-HUDERF
Belgium

Henning Andersen

Aarhus Universitets Hospital
Denmark

Inna Inashkina

Latvian Biomedical Research and Study Centre
Latvia

Isabelle Simone

Azienda Ospedaliero Universitaria Policlinico Bari
Italy

Ivailo Tournev

Expert Centre for Hereditary Neurologic and Metabolic Disorders, University Hospital "Alexandrovska"
Bulgaria

Jackie Palace

Oxford University Hospitals NHS Foundation Trust
UK

Jan De Bleecker

University Hospital Gent
Belgium

Jan Verschuuren

Leiden University Medical Center
Netherlands

Jana Haberlová

Faculty Hospital Motol
Czech Republic

Janneke Hoeijmakers

Maastricht University Medical Centre+
Netherlands

Jean Baptiste Chanson

University Hospital of Strasbourg - Neuromuscular Centre at Hautepierre Hospital
France

Jean-Christophe Antoine

University Hospital of Saint-Etienne
France

Jens Schmidt

Neuromuscular Center, University Medical Center Goettingen
Germany

Joerg Schulz

Uniklinik RWTH Aachen
Germany

John Vissing

Rigshospitalet, Neuromuscular Clinic and Research Unit dep. 8077
Denmark

Josep Gamez

Hospital Universitari Vall d’ Hebron
Spain

Juan J Vilchez

Hospital UiP La Fe
Spain

Claeys Kristl

Kristl Claeys

University Hospitals Leuven, Neuromuscular Reference Centre
Belgium

Leonard van den Berg

University Medical Centre Utrecht
Netherlands

Letizia Mazzini

Azienda Ospedaliero Universitaria "Maggiore della Caritá" di Novara
Italy

Maggie C. Walter

Friedrich-Baur-Institute, Dept. of Neurology, Ludwig-Maximilians-University of Munich
Germany

Manuela Almeida Santos

CHU Porto
Portugal

Mar Tulinius

Sahlgrenska Universitetssjukhuset
Sweden

Maria Judit Molnar

Semmelweis University
Hungary

Massimiliano Filosto

Center for Neuromuscular Diseases, Unit of Neurology, ASST "Spedali Civili"
Italy

Matthias Baumann

Institute of Human Genetics, Medical University Innsbruck
Austria

Monica Sciacco

IRCCS Ca’ Granda Ospedale Maggiore Policlinico
Italy

Peter Van den Bergh

University Hospital St-Luc
Belgium

Prof. Vincenzo Silani MD

IRCCS Istituto Auxologico Italiano
Italy

Robert Brunkhorst

Uniklinik RWTH Aachen
Germany

Sabine Rudnik-Schöneborn

Institute of Human Genetics, Medical University Innsbruck
Austria

Sabrina Sacconi

Sabrina Sacconi

CHU Nice
France

Serenella Servidei

Fondazione Policlinico Universitario A. Gemelli
Italy

Shahram Attarian

Centre Hospitalo-Universitaire La Timone - Assistance Publique des Hôpitaux de Marseille
France

Stanislav Vohanka

University Hospital Brno, Neuromuscular Centre
Czech Republic

Susana Quijano

Susana Quijano-Roy

University Hospital Raymond-Poincaré APHP
France

Tanya Stojkovic

Sorbonne University - Pitié Salpêtrière Hospital - Assistance Public Hopitaux de Paris
France

Teresa Coelho

CHU Porto
Portugal

Teresinha Evangelista – EURO-NMD Coordinator

Sorbonne University - Pitié Salpêtrière Hospital - Assistance Public Hopitaux de Paris
France

Thomas Sejersen

Karolinska University Hospital
Sweden

Tiziana Mongini

Azienda Ospedaliera Universitaria Città della Salute e della Scienza di Torino
Italy

Ulrike Schara

Ulrike Schara-Schmidt

University Clinic Essen
Germany

Valeria A Sansone

Nemo Clinical Center
Italy

Vincent Laugel

University Hospital of Strasbourg - Neuromuscular Centre at Hautepierre Hospital
France

Vincenzo Nigro

University of Campania “Luigi Vanvitelli” - University Hospital “Luigi Vanvitelli”
Italy

Wolfgang Löscher

Institute of Human Genetics, Medical University Innsbruck
Austria

Wolfgang Mueller-Felber

Department of Pediatric Neurology, Dr. v. Hauner Children’s Hospital
Germany

Yann Pereon

University Hospital - CHU de Nantes
France