The Board of the ERN was established in accordance with the procedure stipulated by the Commission Delegated Decision. It includes one representative from each healthcare provider of EURO-NMD and the patient representatives elected by the Patient Advisory Board. Teresinha Evangelista, Coordinator of the ERN chairs the Board.
Consisting of representatives from 84 healthcare providers from across Europe the Board is the primary decision making body accountable for fostering collaboration; removing obstacles to the network successful functioning; and maintaining the focus of the network on the agreed scope, outcomes and benefits.
Albert C. Ludolph
Universitätsklinikum Ulm (UKU) in cooperation with the Universitäts und Rehabilitationskliniken Ulm (RKU)Germany
Aleksandra Nadaj Pakleza
University Hospital of Strasbourg - Neuromuscular Centre at Hautepierre HospitalFrance
George Papadimas
Eginition Hospital, 1st Department of Neurology, National and Kapodistrian University of AthensGreece
Ivailo Tournev
Expert Centre for Hereditary Neurologic and Metabolic Disorders, University Hospital "Alexandrovska"Bulgaria
Kristin Oerstavik
Oslo University Hospital and the National Consortium on Rare Neuromuscular disordersNorway
Maggie C. Walter
Friedrich-Baur-Institute, Dept. of Neurology, Ludwig-Maximilians-University of MunichGermany
Mari Auranen
Hospital University of Helsinki and Hospital District of Hlesinki and Uusimaa (NMDFIN Consortium)Finland
Massimiliano Filosto
Center for Neuromuscular Diseases, Unit of Neurology, ASST "Spedali Civili"Italy
Shahram Attarian
Centre Hospitalo-Universitaire La Timone - Assistance Publique des Hôpitaux de MarseilleFrance
Tanya Stojkovic
Sorbonne University - Pitié Salpêtrière Hospital - Assistance Public Hopitaux de ParisFrance
Teresinha Evangelista – EURO-NMD Coordinator
Sorbonne University - Pitié Salpêtrière Hospital - Assistance Public Hopitaux de ParisFrance
Tiziana Mongini
Azienda Ospedaliera Universitaria Città della Salute e della Scienza di TorinoItaly
Vincenzo Nigro
University of Campania “Luigi Vanvitelli” - University Hospital “Luigi Vanvitelli”Italy
Wolfgang Mueller-Felber
Department of Pediatric Neurology, Dr. v. Hauner Children’s HospitalGermany
