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Governance
How ERNs are approved?
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What are ERNs?
Why rare diseases?
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Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos and FAQ
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
News
See all articles
Propose an article for the website
Events
See all events
Propose a new event to be added to the website
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
Registry Onboarding Dashboard
My EURO-NMD
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Supporting partners
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Supporting partners
Country:
Working Groups:
Cross Cutting Specialised Groups:
Advisory Boards:
Registered with the Care & Trial Site Registry:
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On the map
Country
City
Code
Name
Rare Muscle
Peripheral Neuropathies
Neuromuscular Junction
Motor Neuron Diseases
Mitochondrial diseases
Italy
Bergamo
ASST Papa Giovanni XXIII
ASST Papa Giovanni XXIII
United States of America
Beth Israel Deaconess Medical Center (Harvard Medical School)
Beth Israel Deaconess Medical Center (Harvard Medical School)
Canada (English)
Ottawa
CHEO - Children's Hospital of Eastern Ontario
CHEO - Children's Hospital of Eastern Ontario
France
Tours cedex 9
CHRU Tours
CHRU Tours
France
Toulouse
CHU Toulouse
CHU Toulouse
Spain
CNAG
CNAG
United Kingdom
Cambridge
Department of Clinical Neurosciences - University of Cambridge
Department of Clinical Neurosciences - University of Cambridge
Italy
Rome
Department of Neuroscience, Mental Health and Sensory Organs (NESMOS) SAPIENZA University of Rome Sant’Andrea Hospital
Department of Neuroscience, Mental Health and Sensory Organs (NESMOS) SAPIENZA University of Rome Sant’Andrea Hospital
Bucharest
Emergency University Hospital of Bucharest
Emergency University Hospital of Bucharest
Germany
ERN-RND Universitätsklinikum Tübingen
ERN-RND Universitätsklinikum Tübingen
United Kingdom
London
Great Ormond Street Hospital, Foundation Trust (Regional Hospital UK)
(Former member)
Switzerland
Bern
Inselspital University Hospital of Bern
Inselspital University Hospital of Bern
France
Paris
Institute of Myology, APHP Pitié Salpêtrière, Paris
Institute of Myology, APHP Pitié Salpêtrière, Paris
UK
John Walton Muscular Dystrophy Research Centre
Newcastle
Newcastle University
Newcastle University
UK
Newcastle
Newcastle University - Mitochondrial Research Group
Newcastle University - Mitochondrial Research Group
United Kingdom
Newcastle upon Tyne
Newcastle upon Tyne Hospitals NHS Foundation Trust
United Kingdom
Oxford
Oxford Motor Neurone Disease Centre
Oxford Motor Neurone Disease Centre
United Kingdom
Oxford
Oxford Neuromuscular Centre (Regional Hospital UK)
United Kingdom
Oxford
Oxford University Hospitals NHS Trust
Oxford University Hospitals NHS Trust
United Kingdom
London
The Royal Veterinary College Neuromuscular Group
The Royal Veterinary College Neuromuscular Group
UK
University College London Hospitals NHS Trust
Add or Update Supporting partner Information
