Relevant resources at a distance of a click

Several essential resources support the EURO-NMD network, some supplied by the European Commission and others developed in-house. The objective is to fulfil the ERN’s goals of providing streamlined diagnostic and therapeutic features to support patient care across Europe and propel research in neuromuscular disorders.

The User Guide for the website can be found here

The ERN Collaborative Platform: The collaborative platform is restricted to ERN users. It supports the ERN Board of Member States, the ERN Coordinators, and ERN members in online communication, document management, and event organisation. You need an EU login to access it

ERN acknowledgement in ERN members’ publications/communications: If you publish on the name of an Institution Member of the ERN Euro-NMD you are expected to acknowledge the ERN in the paper. Read More

Advances in Neuromuscular Research

These documents, written by AFM-Téléthon, are updated annually in June and provide an in-depth analysis of the medical and scientific discoveries made over the past 12 months across various neuromuscular diseases. The “Advances in Research” publications have been widely recognized for their quality, as acknowledged by several members of the neuromuscular community.

While all the publications are initially written in French, many have also been translated into English over the past 3-4 years. Each year, four “Advances in Research” documents are professionally translated into English to ensure wider accessibility. Additionally, the CMT (Charcot-Marie-Tooth) Advances have been translated into Italian, thanks to the support of the Italian association.

These resources aim to keep the international neuromuscular community informed and up-to-date with the latest research progress.

FR : https://www.myobase.org/index.php?lvl=search_segment&id=4

EN : https://www.myobase.org/index.php?lvl=etagere_see&id=551

IT : https://www.myobase.org/index.php?lvl=notice_display&id=81075

Task list URLs

Private space: https://ern-euro-nmd.eu/private/

Edit profile: https://ern-euro-nmd.eu/profile/

Groups Membership: https://ern-euro-nmd.eu/private/groups-membership/

Shared files: https://ern-euro-nmd.eu/private/shared-files/

Data collaborations forms: https://ern-euro-nmd.eu/data-collaboration-forms/

Request a group membership: https://ern-euro-nmd.eu/data-collaboration-forms/create/group-membership-request/

Propose a new healthcare provider: https://ern-euro-nmd.eu/data-collaboration-forms/create/healthcare-provider/