Position paperCrisis readiness for rare disease populations: learnings and recommendations by the European Reference NetworksDOI: https://doi.org/10.1016/j.lanepe.2026.101801 Link: Read it here The Lancet Regional Health – Europe NMD See the publication
Position paperEuropean Reference Networks – a flagship activity of the EU in the field of rare and complex diseases: from 2017 to 2025Link: Paper available here OJRD See the publication
