What is EURO-NMD?
“EURO-NMD is a European reference network for the thematic grouping of rare neuromuscular diseases (NMDs),…
June 7, 2022
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Launch of a continuously open survey for ERNs HCPs to report Ukrainian refugees care
The ERNcare4ua.com website has recently launched a EU Survey to monitor the care delivered by…
European Health Data Space (EHDS)
The European Commission launched the European Health Data Space (EHDS), one of the central building…
The ERN Research Mobility Fellowships call
The call for Research Mobility Fellowships aims to support PhD students, Postdocs and…
Call for new patient representatives to join Euro-NMD
In April 2022, 33 patient representatives from 23 patient organisations and 11 countries are involved…
Patient reported outcome measures (PROMs) survey
We are conducting a survey in order to get a better understanding on the knowledge…
ERICA : Collaborative inter-ERN research wall
ERICA aims to promote collaborative inter- ERNs research projects. It is therefore crucial to have…
CPMS: simplifying the access request process
From DG Health “DG Health is looking for solutions that guarantee a high level of…
EJPRD : The ERN Research Training Workshops call
Aim of the call The goal of the workshops is to train researchers and clinicians…
Survey for patients: Unmet needs of rare and complex diseases related to pregnancy and family planning for patients and caregivers
ERN Euro-NMD is participating in a transversal cross-ERN Study Group on Pregnancy and Family Planning…