June 27, 2022
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Targeted Therapies for Leigh Syndrome Systematic Review and Steps Towards a “Treatabolome”
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Duchenne Muscular Dystrophy Genetic Diagnosis
Delivered by Prof. Alessandra Ferlini, Drs. Rita Selvatici, Francesca Gualandi and Carl Fratter.
Medical Survey Screen4Care about Machine Learning
Within Screen4Care, an Innovative Medicines Initiative (IMI 2 JU), researchers are investigating medical specialists’ understanding,…
CPMS monitoring by Centre and by User
FOR REASONS RELATED TO VISIBILITY OF THE ALL SPREADSHEET PLEASE SCROLL DOWN UNTIL YOU SEE…
What are EURO-NMD Centres and how can I find one?
The centres part of EURO-NMD (also know as “healthcare providers”) can be found here. To…
What is EURO-NMD?
“EURO-NMD is a European reference network for the thematic grouping of rare neuromuscular diseases (NMDs),…
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Launch of a continuously open survey for ERNs HCPs to report Ukrainian refugees care
The ERNcare4ua.com website has recently launched a EU Survey to monitor the care delivered by…
European Health Data Space (EHDS)
The European Commission launched the European Health Data Space (EHDS), one of the central building…