HCP list with CPMS code
CODE INSTITUTION OFFICIAL NAME NAME IN ENGLISH CITY COUNTRY AT04 Medizinische Universität Innsbruck MEDICAL UNIVERSITY…
December 13, 2022
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ERNs support “call to action” – Czech presidency of the council of the European Union
The Czech Presidency of the EU Council organised the Expert Conference on Rare Diseases in…
EJPRD: The Joint Transnational Call 2023
The European Joint Programme on Rare Diseases launched on Dec 12th the Joint Transnational Call…
EURO-NMD Annual Meeting 2023
Agenda Porto Main Meeting We are very delighted to announce the next EURO-NMD Annual Meeting…
FSHD Society’s Masterclass on demand for a fee
A state-of-the-art, on-demand CME course for clinicians involved with the diagnosis and management of care…
Amicus-sponsored Young Investigator Excellence in Research programme in Pompe disease
Amicus Therapeutics is sponsoring the “Young Investigator Excellence in Research Programme for research focused on…
The brand new European Society for Mitochondrial Research and Medicine (E-Mit)
We are delighted to introduce to you the European Society for Mitochondrial Research and Medicine…
EJPRD : New free MOOC “Introduction to translational research for Rare Diseases”
On October 17th, a new MOOC entitled “Introduction to translational research for Rare Diseases” will…
Getting involved in the new multidisciplinary care work group at ERN EURO-NMD
Our new full member from Norway is currently building a new work group on multidisciplinary…
The new Phenopackets ISO standard facilitates data sharing
The International Organization for Standardization (ISO) has published Phenopackets, the first clear computational way to…
Brescia Workshop on Neuromuscular Diseases
On 22-24 September 2022, at the Centro Congressi Paolo VI took place the Brescia Workshop…
FAIR Data Sharing Without Oversharing
Duchenne Parent Project and European Reference Network for Neuromuscular Diseases can now begin leveraging their…