FAIR Data Sharing Without Oversharing
Duchenne Parent Project and European Reference Network for Neuromuscular Diseases can now begin leveraging their…
September 9, 2022
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The ERN Research Mobility Fellowships call
The Research Mobility Fellowships will open on October 3rd, 2022 The call for Research Mobility…
MFM Delphi Round 1
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EJPRD : Innovation Management Toolbox (IMT)
The Innovation Management Toolbox is a reference library of resources in rare disease translational medicine.…
Primary Mitochondrial Myopathies
Delivered by Pr. Dr. Michelangelo Mancuso
Duchenne Muscular Dystrophy Genetic Diagnosis
Delivered by Prof. Alessandra Ferlini, Drs. Rita Selvatici, Francesca Gualandi and Carl Fratter.
Targeted Therapies for Leigh Syndrome Systematic Review and Steps Towards a “Treatabolome”
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Medical Survey Screen4Care about Machine Learning
Within Screen4Care, an Innovative Medicines Initiative (IMI 2 JU), researchers are investigating medical specialists’ understanding,…
CPMS monitoring by Centre and by User
FOR REASONS RELATED TO VISIBILITY OF THE ALL SPREADSHEET PLEASE SCROLL DOWN UNTIL YOU SEE…
What are EURO-NMD Centres and how can I find one?
The centres part of EURO-NMD (also know as “healthcare providers”) can be found here. To…