Register for the FAIR training March 2023
A FAIR Training Program will be available online to all those interested in understanding the value…
January 25, 2023
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Who’s who in EURO-NMD
Adriano Chiò University Hospital Città della Salute e della Scienza of Torino, Italy Albert C.…
AFM-Téléthon : Scientific and Medical Research Call for Proposals for 2023
The development of new therapeutic concepts for rare diseases and the understanding of the causes…
Official 5 years EC-evaluation of ERNs and their members
The official EC-evaluation process of the ERNs and their Full Members as per Commission implementing decision…
HCP list with CPMS code
CODE INSTITUTION OFFICIAL NAME NAME IN ENGLISH CITY COUNTRY AT04 Medizinische Universität Innsbruck MEDICAL UNIVERSITY…
ERNs support “call to action” – Czech presidency of the council of the European Union
The Czech Presidency of the EU Council organised the Expert Conference on Rare Diseases in…
EJPRD: The Joint Transnational Call 2023
The European Joint Programme on Rare Diseases launched on Dec 12th the Joint Transnational Call…
EURO-NMD Annual Meeting 2023
Agenda Porto Main Meeting We are very delighted to announce the next EURO-NMD Annual Meeting…
FSHD Society’s Masterclass on demand for a fee
A state-of-the-art, on-demand CME course for clinicians involved with the diagnosis and management of care…
Amicus-sponsored Young Investigator Excellence in Research programme in Pompe disease
Amicus Therapeutics is sponsoring the “Young Investigator Excellence in Research Programme for research focused on…
The brand new European Society for Mitochondrial Research and Medicine (E-Mit)
We are delighted to introduce to you the European Society for Mitochondrial Research and Medicine…
EJPRD : New free MOOC “Introduction to translational research for Rare Diseases”
On October 17th, a new MOOC entitled “Introduction to translational research for Rare Diseases” will…