Registries Position Paper Issued by Patient Advisory Board
EURO-NMD Patient Advisory Board (PAB) has published a position paper which describes patients’ views on…
EURO-NMD Patient Advisory Board (PAB) has published a position paper which describes patients’ views on…
We are delighted that our patient focussed summer newsletter is now available to read. In…
We are delighted to announce that our EURO-NMD has established a Memorandum of Understanding with…
EURO-NMD are inviting you to a webinar presented by Dr Emilien Delmont on the subject of Diagnosis and…
We are delighted to announce that the series of RD-Connect webinars are now available online.…
Save the date for our meeting in Freiburg! We’re currently developing an exciting programme for…
The 3rd official European Reference Network (ERN) conference took place in Vilnius, Lithuania, on the…