Rare disease community raises alert over discrimination in critical care guidelines during COVID-19 pandemic
EURORDIS urges immediate action and proposes concrete solutions 31 March, Paris – EURORDIS-Rare Diseases Europe…
EURORDIS urges immediate action and proposes concrete solutions 31 March, Paris – EURORDIS-Rare Diseases Europe…
NMD4c the neuromuscular network for Canada releases information regarding pulmonary support for Myotonic Dystrophy patients…
NMD4c the neuromuscular network for Canada releases recommendations for home based ventilation. As COVID-19 continues…
Press release 27/03/2020 EMA is aware of recent media reports and publications which question whether some medicines, for…
This article has been developed to offer guidance for those people who are affected by…
On 24 March, the European Commission launched the “COVID-19 Clinical Management Support System” with the…
Dr. Maxwell S. Damian, PhD, collated the World Muscle Society (WMS) Covid-19 advice (28th March…
Coronavirus: ALERT on the use of chloroquine in myasthenia gravis Please note: in myasthenia gravis,…
The current guidelines regarding COVID-19 exposure and preventive measures can be found on the World…
We are sad to announce that we have taken the difficult decision to postpone the…
People living with SMA, ALS and other rare disease was the focus of the Rare…
The Share4Rare Congenital Muscular Dystrophies chapter is now available. The chapter describes the different types…