Rare disease community raises alert over discrimination in critical care guidelines during COVID-19 pandemic
EURORDIS urges immediate action and proposes concrete solutions 31 March, Paris – EURORDIS-Rare Diseases Europe…
April 1, 2020
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Pulmonary Support for Myotonic Dystrophy Patients During COVID-19 Pandemic
NMD4c the neuromuscular network for Canada releases information regarding pulmonary support for Myotonic Dystrophy patients…
COVID-19: Care Recommendations for Home-Based Ventilation Patients
NMD4c the neuromuscular network for Canada releases recommendations for home based ventilation. As COVID-19 continues…
EMA advises continued use of medicines for hypertension, heart or kidney disease during COVID-19 pandemic
Press release 27/03/2020 EMA is aware of recent media reports and publications which question whether some medicines, for…
Guidance for the management of Myasthenia Gravis (MG) and Lambert-Eaton Myasthenic Syndrome (LEMS)
This article has been developed to offer guidance for those people who are affected by…
EU Commission launches “COVID-19 Clinical Management Support System”
On 24 March, the European Commission launched the “COVID-19 Clinical Management Support System” with the…
Covid-19 and people with neuromuscular disorders: World Muscle Society position and advice
Dr. Maxwell S. Damian, PhD, collated the World Muscle Society (WMS) Covid-19 advice (28th March…
Coronavirus: ALERT on the use of chloroquine in myasthenia gravis
Coronavirus: ALERT on the use of chloroquine in myasthenia gravis Please note: in myasthenia gravis,…
COVID-19 advice for the NMD community – UPDATED
The current guidelines regarding COVID-19 exposure and preventive measures can be found on the World…
Translational Summer School 2020 – Postponed!
We are sad to announce that we have taken the difficult decision to postpone the…
EURO-NMD takes part in rare diseases day at the European Parliament
People living with SMA, ALS and other rare disease was the focus of the Rare…
New Share4Rare Chapter for Congenital Muscular Dystrophies
The Share4Rare Congenital Muscular Dystrophies chapter is now available. The chapter describes the different types…