COVID-19 advice for the NMD community – UPDATED
The current guidelines regarding COVID-19 exposure and preventive measures can be found on the World…
March 25, 2020
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Translational Summer School 2020 – Postponed!
We are sad to announce that we have taken the difficult decision to postpone the…
EURO-NMD takes part in rare diseases day at the European Parliament
People living with SMA, ALS and other rare disease was the focus of the Rare…
New Share4Rare Chapter for Congenital Muscular Dystrophies
The Share4Rare Congenital Muscular Dystrophies chapter is now available. The chapter describes the different types…
Registries Position Paper Issued by Patient Advisory Board
EURO-NMD Patient Advisory Board (PAB) has published a position paper which describes patients’ views on…
Patient focussed summer newsletter now available
We are delighted that our patient focussed summer newsletter is now available to read. In…
EAN and EURO-NMD establishes memorandum of understanding
We are delighted to announce that our EURO-NMD has established a Memorandum of Understanding with…
EURO-NMD Webinar – Diagnosis & treatment of CIDP associated to antibodies against node of Ranvier
EURO-NMD are inviting you to a webinar presented by Dr Emilien Delmont on the subject of Diagnosis and…
RD-Connect webinars now available online
We are delighted to announce that the series of RD-Connect webinars are now available online.…
Save the date – 29-30 November
Save the date for our meeting in Freiburg! We’re currently developing an exciting programme for…
3rd conference on European Reference Networks – a report
The 3rd official European Reference Network (ERN) conference took place in Vilnius, Lithuania, on the…