Training needs in rare neuromuscular diseases in Europe: an EURO-NMD Survey.
EURO-NMD is running a survey to map the training needs in rare neuromuscular diseases in…
August 11, 2021
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First CPMS Grand Round: access on demand to the recording on CPMS
The First CPMS Grand Round was a success according to the feedback that we have…
Results of Survey: COVID19 Hospital Feedback
One year ago, the EURO-NMD has launched a survey for Hospitals to feedback the situation…
CPMS Grand Rounds: the first one will be on Friday 6th August 4PM-5PM Paris time
The Grand Rounds will be bi- monthly 1-hour online clinical discussion sessions of undiagnosed/complex/unusual presentations…
Feedback for 2023 webinars
The following graphs reflect the totality of answers according to people’s grading of their satisfaction…
Institute of Myologie Newsletter #86
The most recent newsletter from the Institute of Myologie is available. Among many other themes…
July 2021 Newsletter ERN Exchange Programme 2021-2022
“The ERN Exchange Programme was designed to share knowledge and stimulate collaboration between healthcare professionals…
Orphanet July 2021 Newsletter “Orphanews”
This month’s Orphanews has an editorial about “Building a better future for rare diseases: campaigns…
ERN-RND for Rare Neurological Diseases July 2021 newsletter
The ERN-RND July 2021 newsletter talks about the ERN-RND Annual Meeting, contains information about, webinars,…
Fulcrum Therapeutics Announces Results from ReDUX4 Trial with Losmapimod in Facioscapulohumeral Muscular Dystrophy (FSHD) Demonstrating Slowed Disease Progression and Improved Function
Although the main outcome measure of the trial was not met (“Changes in DUX4-driven gene…
FSHD European Trial Network (FSHD ETN) Newsletter – July 2021
The July 2021 newsletter of FSHD European Trial Network is now available. Click the link…
June 2021 EJPRD Newsletter
Themes of the EJPRD June 2021 Newsletter: Resource Finder Demonstration Resource Webinar: Human Pluripotent Stem…