Job Vacancies

When we become aware of any upcoming job opportunities that we think might be of interest they will included here.

Research & Policy Project Manager

Closing date – 20 April 2018

EURORDIS is a unique, non ‐ profit alliance of 792 rare disease patient organisations from 69 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and patient services.

Key tasks & responsibilities

The Research & Policy Project Manager (RPPM) is responsible for the support of EURORDIS’ involvement in Research Projects comprising activities related to rare disease research, diagnostics, infrastructures and technologies as well as related ethical issues. The RPPM will work closely with the Scientific Director, Therapeutic Development Director, ERN & Healthcare Director, Patient Engagement Senior Manager and other team members to develop the healthcare and research networks and infrastructure to meet the needs of the rare disease community.

Find out more –

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit