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About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
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How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos
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Educational Resources
Educational Board
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EURO-NMD Academy (Moodle)
Publications
Guidelines
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
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Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
News
See all articles
Add a new article
Events
See all events
Add a new event
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
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HCP main contact
Members of HCP main contact
View group members
Bela Melegh
Borut Peterlin
Carlos Casasnovas Pons
Carol Fenech
Claudio Bruno
Cornelia Kornblum
Cristina Domínguez-González
Arnaud Vanlander
Daniel Natera de Benito
Eleni Zamba-Papanicolaou
Enrico Bertini
Eustachio D'Errico
Evelina Grušauskienė
Fernand Pauly
Fiore Manganelli
Francina Munell
Gabriele Siciliano
Gauthier Remiche
Guilhem Solé
Jan Verschuuren
Jana Haberlova
Janneke Hoeijmakers
Johanna Palmio
John Vissing
Jonathan Baets
Sofou Kalliopi
Kristin Ørstavik
Leonard Feasson
Leonidas Stefanis
Liis Väli
Lorenzo Maggi
Aline Bernassola
Marcio Neves Cardoso
Mari Auranen
Maria Judit Molnar
Marit Otto
Michael van Es
Monica Sciacco
Montserrat Olivé Plana
Nadine van der Beek
Nicol Voermans
Nicolas Dubuisson
Orla Hardiman
Philippe Couratier
Robert Brunkhorst
Rocco Liguori
Sabine Rudnik-Schöneborn
Sabrina Sacconi
Serenella Servidei
Shahram Attarian
Stefano Previtali
Susana Quijano-Roy
Tanya Stojkovic
Teresa Sevilla
Thomas Sejersen
Ulrike Schara-Schmidt
Viktorija Kenina
Vincenzo Nigro
Vincenzo Silani
Wolfgang Müller-Felber
Yann Pereon
Luis Querol Gutiérrez
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