MRI pattern recognition in leukodystrophies
Delivered by: Nicole Wolf (Emma Children’s Hospital, Amsterdam University Medical Centre, the Netherlands) On the: 8 June 2021, 3-4pm CET The speaker is consultant child…
27 May 2021
Events
We will keep the event information shown here as up to date as possible however, we strongly recommend that you check directly with any event that you are planning to attend to ensure it is indeed taking place at this time.
This page aims to provide a comprehensive listing of meetings and events relevant to the neuromuscular field. If you wish to notify us of an event that should be included in our listing, please on this button below.
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Future EventsPast Events2021 - Jun
2021 - May
What’s new in FSHD?
This webinar is about what is new in FSHD. The field of FSHD is rapidly evolving. The clinical and genetic variability of this disease become more…
Muscle and Ageing
This Euro-NMD webinar, organised in collaboration with ERN-RND Rare Neurological Disorders and the European Academy of Neurology, is about Muscle and Ageing. It is…
2021 - Apr
Research study on neuromuscular diseases: interactive session with families.
Share4 Rare is organizing a webinar for families who want to join the Share4Rare research pilot. This research project focuses on how being an /…
MR Biomarkers in Spinocerebellar Ataxias
Click to view webinar Next European Reference Network for Rare Neurological Diseases joint webinar with Euro-NMD ERN for rare neuromuscular diseases and the European Academy…
Modeling disease progression in GNE Myopathy
https://youtu.be/D6SaNX6uM-k Delivered by: Melanie Quintana Description: We describe a Bayesian repeated measures model based on quantitative muscle strength data from a prospective Natural History…
2021 - Mar
Setting up a FAIR registry for Euro-NMD
https://youtu.be/LIpUU-wj530 Watch this video-presentation by Peter-Bram van ‘t Hoen, where he shares his first experiences and plans for setting up an European Reference Network…
Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity
Click here to view webinar 23MAR 2021 15:00-16:00 CET Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity’ by Harro Seelaar The speaker is Neurologist…
Telemedicine in NMD: state of the art
Delivered by: Sabrina Sacconi and Gabriele Siciliano Telemedicine in NMD: state of the art Sabrina SACCONI is Professor of Neurology at Nice University Hospital…
Myoclonus dystonia
Next ERN-RND joint webinar with Euro-NMD and European Academy of Neurology 9 March, 15-16h CET Speaking Belén Pérez Dueñas Of Vall d’Hebron University Hospital, Barcelona,…
2021 - Feb
Rare Diseases Day 2021
Rare Disease Day 2021 will take place on Sunday 28th February and around the world many awareness raising events have been organised. We would like…
Occurrence of both skeletal muscle and peripheral nerve involvement in genetic and acquired disorders
By Prof Antonio Toscano, Neurologist and Neuromuscular Expert, Dean of the Medical Faculty of the University of Messina, IT Prof. Toscano scientific activity has been…