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The 25th International Congress of the World Muscle Society will be held virtually, a first for the WMS! The virtual meeting will still provide a…

ICNMD will be offering a Virtual teaser this 11 – 14 September 2020. This Fall will feature just some of the latest science collected to…

Annual joint meeting of Czech and Slovak neuromuscular society. Congress languages are Czech, Slovak, and English. Please note: This congress now has a new dates…

This congress has been postponed for full, up to the minute details please visit the congress website. The International Congress on Neuromuscular Diseases, ICNMD 2020…

Research is at the heart of solutions for all patients. However, it is not always conducted with the patient in mind. Patient organisations are increasingly…

The current state of the COVID-19 pandemic has led Cure SMA to reschedule its annual conference events as virtual gatherings. Please save the date for…

The current state of the COVID-19 pandemic has led Cure SMA to reschedule its annual conference events as virtual gatherings. Please save the date for…

  This webinar was delivered Karim Wahbi who is Professor of Cardiology at the University of Paris, France and head of the reference centre for…

Postponement  of the RE(ACT) Congress and IRDiRC Conference   We regret to announce that this event has postponed due to current international travel policies. It…

The innovative “Rare Diseases Research (RDR) Challenges” call will be implemented to facilitate and fund collaboration between industry, academia, SMEs, and patient organizations to solve…

Rare Disease Day 2020 is on Saturday 29th February! We don’t think it can get more special than that! More details to follow.

This webinar will be presented by Professor Robert McFarland from Newcastle University in the UK. Joint webinar series by the European Reference Networks for Rare…