Others

Rare Disease Day 2021 will take place on Sunday 28th February and around the world many awareness raising events have been organised. We would like…

The European Rare disease research Coordination and support Action (ERICA) Project received a positive evaluation for a H2020 grant to establish a structural framework in support of the…

Please, read it online clicking on the link we provide. The European Joint Programme on Rare Diseases (EJP RD) brings over 130 institutions (including all 24 ERNs)  from 35…

Owing to the ongoing situation with covid-19, this event will be organised as a virtual conference. Abstract deadline: 6 October 2020 This will be the…

The 25th International Congress of the World Muscle Society will be held virtually, a first for the WMS! The virtual meeting will still provide a…

ICNMD will be offering a Virtual teaser this 11 – 14 September 2020. This Fall will feature just some of the latest science collected to…

Annual joint meeting of Czech and Slovak neuromuscular society. Congress languages are Czech, Slovak, and English. Please note: This congress now has a new dates…

This congress has been postponed for full, up to the minute details please visit the congress website. The International Congress on Neuromuscular Diseases, ICNMD 2020…

Research is at the heart of solutions for all patients. However, it is not always conducted with the patient in mind. Patient organisations are increasingly…

The current state of the COVID-19 pandemic has led Cure SMA to reschedule its annual conference events as virtual gatherings. Please save the date for…

The current state of the COVID-19 pandemic has led Cure SMA to reschedule its annual conference events as virtual gatherings. Please save the date for…

  This webinar was delivered Karim Wahbi who is Professor of Cardiology at the University of Paris, France and head of the reference centre for…